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DES Daughters, Embodied Knowledge, and the Transformation of Women's Health Politics in the Late Twentieth Century
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DES Daughters, Embodied Knowledge, and the Transformation of Women's Health Politics in the Late Twentieth Century

Susan E. Bell
2009

Abstract

Anthropology, Education, Sociology and Social Phenomena Benzene Derivatives Benzylidene Compounds Chemicals and Drugs Delivery of Health Care DES-exposed daughters Diethylstilbestrol Feminism Feminism - Health aspects Health & Biological Sciences Health aspects Health Care Economics and Organizations Health Care Facilities, Manpower, and Services Health Policy Health Services Humanism Humanities Hydrocarbons Hydrocarbons, Aromatic Hydrocarbons, Cyclic Medical policy Organic Chemicals Policy Social Control Policies Social Control, Formal Stilbenes Toxicology & Public Health Women's health services Ethics Health Care Philosophy Public Health Public Policy Social Sciences Sociology
From the 1940s to the 1970s, millions of women were exposed prenatally to the synthetic estrogen DES, a “wonder drug” intended to prevent miscarriages. However, DES actually had damaging consequences for the women born from DES mothers. The “DES daughters” as they are known, were found to have a rare form of vaginal cancer or were infertile. They were also at risk for miscarriages, stillbirths, and ectopic pregnancies. In DES Daughters, Susan Bell recounts the experiences of this generation of “victims.” In moving, heartfelt narratives, she presents the voices of those women who developed cancer, those who were cancer-free but have concerns about becoming pregnant, and those who suffered other medical and/or reproductive difficulties. Bell examines the hierarchy of knowledge and power of scientists, doctors, and daughters, tracing the emergence of a feminist health movement. The “embodied knowledge” of these DES daughters prompted them to become advocates and form a social movement that challenged reproductive medical knowledge specifically, but also the politics of women’s health in general. Bell’s important book chronicles the history and future of these grassroots activists born out of illness, suffering, and uncertainty.

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