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What the World Needs Now: Learning About and Acting on Autism Research
Book chapter

What the World Needs Now: Learning About and Acting on Autism Research

Understanding Autism
27 Nov 2011

Abstract

autism autism research autistic children knowledge production love parents science studies Social and Cultural Anthropology
This conclusion returns to the question of love as both a subject and a method for research on autism. Many researchers now agree with parents that although autism is a useful term for describing a common behavioral syndrome, it is one that offers few insights into the particular biology of individual children. It may say even less about adults because, in addition to the biological and cognitive diffrences among them, they have been shaped by experiences over a lifetime. This conclusion reviews the evidence for love's centrality to the work of producing knowledge about autism and in particular the importance of parents' caring as a source of insights about autistic children. It also considers the issues that these arguments raise about knowledge production in the field of science studies. Finally, it explains how we can move forward from here to include other neglected voices in autism research, in particular people on the autism spectrum.

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