Dissertation
Accounting for major program evaluation components used in published patient support programs for chronic disease: a descriptive study
Doctor of Health Science (D.H.Sc.), Drexel University
Aug 2022
DOI:
https://doi.org/10.17918/00001493
Abstract
Patients living with chronic diseases have continued to increase in the US for decades. Managing and treating chronic disease has become more complex, requiring disease state patient education, lifestyle-enhancing measures, and collaboration of care between patients and practitioners. Pharmaceutical companies, along with private specialty pharmacy organizations, have created care interventions, known as patient support programs (PSP), to assist patients as they manage their disease. However, not all programs are designed and implemented the same way; therefore, leaving open the important question of what components of a patient support program are historically used to ostensibly achieve positive patient outcomes? The purpose of this descriptive study is to identify the various components, i.e., inputs, activities, outputs, outcomes, and impact, used within well-supported and implemented patient support programs (PSP). Accounting for utilizing these components helps determine current practice and identifies what program sponsors see as "best practices" that lead to the greatest patient health outcomes. To this aim, I reviewed 41 private and pharmaceutical-sponsored patient support programs published in peer-reviewed journals from 2005 to 2020. Thirty-one programs were identified from a major literature review conducted by Arijit Ganguli, Jerry Clewell, and Alicia Shillington (2016) titled, "The impact of patient support programs on adherence, clinical, humanistic, and economic patient outcomes; a targeted systematic review," and published in the journal Patient Preference and Adherence. An additional 11 articles on PSP were identified to contemporize what is taking place since the original extensive review by the authors. Findings from this review will account for conventional components used in patient support programs, differences among them, and unique aspects; after which the development of the best practices framework for future PSPs can be offered. These findings can support companies as they make important business decisions on how to best create a PSP that will generate a return on investment (ROI), improve relationships with customers and patients, and provide the necessary support to manage chronic disease.
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Details
- Title
- Accounting for major program evaluation components used in published patient support programs for chronic disease
- Creators
- Jaime L. Liberi
- Contributors
- Stephen F. Gambescia (Advisor)
- Awarding Institution
- Drexel University
- Degree Awarded
- Doctor of Health Science (D.H.Sc.)
- Publisher
- Drexel University; Philadelphia, Pennsylvania
- Number of pages
- 83 pages
- Resource Type
- Dissertation
- Language
- English
- Academic Unit
- College of Nursing and Health Professions; Drexel University; Health Sciences
- Other Identifier
- 991020220847904721