Dissertation
Content validation of the perinatal palliative care advance care birth plan following the American Psychological Association's guidelines
Doctor of Nursing Practice (D.N.P.), Drexel University
2015
DOI:
https://doi.org/10.17918/etd-6493
Abstract
Background and Purpose: The purpose of this project was to validate the content of the perinatal palliative care advance care birth plan (ACBP). Families of these infants experience a myriad of emotions when faced with the diagnosis that their baby will not survive. The healthcare team should support these families with a level of comfort and confidence. Without a formalized program or document of families' wishes and expectations, communication within the team of specialists and consultants can be challenging for the family and the healthcare team. In order to provide ethical, psychosocial, spiritual, cultural and clinical care, a confident team requires coordination and organization. Methods: Experts in perinatal bereavement, hospice and palliative care were asked to evaluate the content of the ACBP for clarity, comprehensiveness, and relevance. Each section of the ACBP was evaluated and comments were extrapolated and trends identified to affect revisions to the document. Evaluation: Prior to distributing the ACBP to the nationally recognized experts, professionals that would be utilizing the ACBP in a large university-based hospital system in the southern United States were asked to evaluate the ACBP for content and clarity. Combined comments were extrapolated and revisions to the ACBP document were completed. A letter included with the ACBP explained the evaluation process and need to validate the content of the ACBP. Clinical Implications/Recommendations: The ACBP will provide a template for difficult conversations between the healthcare team and the family of these infants with life-limiting conditions. The ACBP provides a bridge of communication with the entire healthcare team ensuring a comprehensive care model and structure. Healthcare teams, patients and their families will have integrated, informed decision-making capacity in the birth, life and death of their infant.
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Details
- Title
- Content validation of the perinatal palliative care advance care birth plan following the American Psychological Association's guidelines
- Creators
- Cheryl J. Bonecutter - DU
- Contributors
- Patti Rager Zuzelo (Advisor) - Drexel University (1970-)
- Awarding Institution
- Drexel University
- Degree Awarded
- Doctor of Nursing Practice (D.N.P.)
- Publisher
- Drexel University; Philadelphia, Pennsylvania
- Resource Type
- Dissertation
- Language
- English
- Academic Unit
- Doctoral Nursing; Nursing (Graduate); College of Nursing and Health Professions; Drexel University
- Other Identifier
- 6493; 991014632430804721