Dissertation
Exploring school lived experiences of secondary students with the chronic illness of sickle cell disease through their parents' lens
Doctor of Education (Ed.D.), Drexel University
Jun 2022
DOI:
https://doi.org/10.17918/00000941
Abstract
The purpose of this qualitative study was to explore the academic and emotion of secondary students with sickle cell disease school experiences as their parents recalled them. Educators are responsible for ensuring access to quality education for all students. Students with disabilities have a legal right to a free appropriate public education under Section 504 and the Individualized Education Program (IEP The chronic illness this research will focus on is children living with sickle cell disease. Sickle cell disease is an inherited blood disorder that causes severe pain episodes when sickled blood cells get stuck in blood vessels. To explore these experiences, the researcher employed a qualitative phenomenological approach to inquiry. The researcher also employed a social constructivism approach. The qualitative data collection methods used to gain in-depth understanding were semi-structured interviews, focus groups, member checks, and some artifacts review. The researcher analyzed the literature and current educational policies (Section 504, IEP, and homebound) to understand the disparity in education opportunities. The inquiry investigated the academic challenges and socioemotional stressors and practices in school that may lead to learning gaps and psychosocial risk. The study likewise delved into the current competencies that schools should know about working effectively with this population. These problems are ominous and challenging for many sickle cell disease children and families. Once the data were collected and analyzed, the researcher presented findings, results, conclusions, and recommendations. Keywords: chronic illness, sickle cell disease, best practice, Section 504, Individualized Education Program (IEP), homebound, stressors, and social constructivism
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Details
- Title
- Exploring school lived experiences of secondary students with the chronic illness of sickle cell disease through their parents' lens
- Creators
- Christopher Harden
- Contributors
- Janet Marie Sloand (Advisor)
- Awarding Institution
- Drexel University
- Degree Awarded
- Doctor of Education (Ed.D.)
- Publisher
- Drexel University; Philadelphia, Pennsylvania
- Number of pages
- x, 144 pages
- Resource Type
- Dissertation
- Language
- English
- Academic Unit
- School of Education (1997-2026); Drexel University
- Other Identifier
- 991017130275404721