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Dissertation
Measuring self-care independence in cystic fibrosis
Doctor of Philosophy (Ph.D.), Medical College of Pennsylvania and Hahnemann University
Dec 2000
DOI:
https://doi.org/10.17918/00008126
Abstract
Cystic Fibrosis (CF) is a serious genetic illness that affects the respiratory, digestive, and reproductive systems of patients. CF treatment may include a complex and rigorous daily regimen of medication, dietary, and lung clearance recommendations. These behaviors involve many lifestyle changes for patients and families. A number of recent studies have uncovered psychosocial and medical factors that may promote or inhibit the adherence rates of patients. Moreover, they have identified developmental factors which can moderate the relationship between psychosocial correlates of adherence and patients' adherence. The findings of these studies warrant keen attention to theories of child development when designing research and intervention projects for young patients with CF. The goal of this project was to investigate the self-care independence in a sample of pediatric patients with CF. There were two main objectives: first, to develop an empirically validated measure of self-care independence for patients with CF and second, to use the proposed measure to examine the percentage rates of children with CF who had mastery of self-care skills at specific chronological ages. Data were collected from 80 patients with CF (ages 4 to 17 years) and their families. Outcome variables were obtained from self-report questionnaires and through structured interviews. A separate sample of 174 professionals who work with pediatric patients with CF was recruited to provide age estimates of skill mastery for 44 self-care behaviors. Data supporting the internal consistency, test-retest reliability, and concurrent validity of the proposed independence measure are presented in this paper. Additional analyses evaluating the predictive validity of the independence measure with patient adherence offered only limited support of the hypothesized relationship between these constructs. In fulfillment of the second objective, the percentage rates of children with specific skill mastery in each of 14 chronological age groups are examined. These data are compared by patient and professional samples and yield four profiles of comparative relationships.
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Details
- Title
- Measuring self-care independence in cystic fibrosis
- Creators
- Susana R. Patton
- Contributors
- Julie Landel Graham (Advisor) - Drexel University, Medical College of Pennsylvania and Hahnemann University (1993-1996, 1998-2002)
- Awarding Institution
- Medical College of Pennsylvania and Hahnemann University
- Degree Awarded
- Doctor of Philosophy (Ph.D.)
- Publisher
- Medical College of Pennsylvania and Hahnemann University; Philadelphia, Pennsylvania
- Number of pages
- ix, 226 pages
- Resource Type
- Dissertation
- Language
- English
- Academic Unit
- Clinical and Health Psychology [Historical]; Medical College of Pennsylvania and Hahnemann University (1993-1996, 1998-2002); College of Nursing and Health Professions (2000-2002)
- Other Identifier
- 991021888888804721