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Survey of clinical trial practitioners' perceptions of the utility of sexual orientation, gender identity, and intersex status data collection in clinical trials
Dissertation   Open access

Survey of clinical trial practitioners' perceptions of the utility of sexual orientation, gender identity, and intersex status data collection in clinical trials

Jessica Lynn Brescher
Doctor of Health Science (D.H.Sc.), Drexel University
23 Jun 2025
DOI:
https://doi.org/10.17918/00011215
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Abstract

Sexual orientation Gender identity SOGI Clinical Trials
As a socially disenfranchised minority, sexual and gender diverse (SGD) patients have documented poorer health outcomes compared to others. Addressing the impact of health disparities on marginalized communities is an ethical charge and requires a comprehensive approach to data collection and use across all sectors, including clinical trials. This study highlights a gap in clinical trial practitioners' understanding of the utility of SOGIIS data collection. If data collection is to be widespread, continued education and advocacy is required for clinical trial practitioners.

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