Journal article
"A Guide to Gutsy Living": Patient-Driven Development of a Pediatric Ostomy Toolkit
Pediatrics (Evanston), v 141(5), e20172789
May 2018
PMID: 29610402
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
As patients (J.G.D. and A.J.) who have lived with pediatric-onset inflammatory bowel disease (IBD) since 12 and 9 years of age, respectively, and who underwent ostomy surgery at 19 and 15 years of age, respectively, we experienced a lack of psychosocial education about our surgeries. This negatively impacted our ability to adjust postoperatively to having an ostomy. For example, we had to learn how to explain our ostomies to friends and how having an ostomy might impact our clothing choices. The education we received about our ostomy surgery was brief and focused only on basic skills regarding caring for an ostomy, including changing and emptying the bag, but did not address concerns we had about living with ostomies as part of our everyday lives. This educational void placed the burden on us as patients to find resources on our own, decide if the information was appropriate, and determine if it...
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Details
- Title
- "A Guide to Gutsy Living": Patient-Driven Development of a Pediatric Ostomy Toolkit
- Creators
- Jennie G David - Drexel UniversityAlexander Jofriet - University of CincinnatiMichael Seid - Cincinnati Children's Hospital Medical CenterPeter A Margolis - Cincinnati Children's Hospital Medical Center
- Publication Details
- Pediatrics (Evanston), v 141(5), e20172789
- Grant note
- R01 DK085719 / NIDDK NIH HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Psychological and Brain Sciences (Psychology)
- Web of Science ID
- WOS:000431231300009
- Scopus ID
- 2-s2.0-85046484182
- Other Identifier
- 991021903705004721
UN Sustainable Development Goals (SDGs)
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Pediatrics