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Accepted (AM)Open Access (License Unspecified), Open
Journal article
A Narrative Review of Patient and Family Engagement The "Foundation" of the Medical "Home"
Medical care, v 54(7), pp 697-705
01 Jul 2016
PMID: 27111748
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background: Patient and family engagement (PFE) is vital to the spirit of the medical home. This article reflects the efforts of an expert consensus panel, the Patient and Family Engagement Work group, as part of the Society of General Internal Medicine's 2013 Research Conference.
Objective: To review extant literature on PFE in pediatric and adult medicine and quality improvement, highlight emerging best practices and models, suggest questions for future research, and provide references to tools and resources to facilitate implementation of PFE strategies.
Methods: We conducted a narrative review of relevant articles published from 2000 to 2015. Additional information was retrieved from personal contact with experts and recommended sources from workgroup members.
Results: Despite the theoretical importance of PFE and policy recommendations that PFE occurs at all levels across the health care system, evidence of effectiveness is limited, particularly for quality improvement. There is some evidence that PFE is effective, mostly related to engagement in the care of individual patients, but the evidence is mixed and few studies have assessed the effect of PFE on health outcomes. Measurement issues and the lack of a single comprehensive conceptual model pose challenges to progress in this field. Recommendations for future research and a list of practical tools and resources to facilitate PFE are provided.
Conclusions: Although PFE appeals to patients, families, providers, and policy-makers, research is needed to assess outcomes beyond satisfaction, address implementation barriers, and support engagement in practice redesign and quality improvement. Partnering with patients and families has great potential to support high-quality health care and optimize outcomes.
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Details
- Title
- A Narrative Review of Patient and Family Engagement The "Foundation" of the Medical "Home"
- Creators
- Crystal W. Cene - University of North Carolina at Chapel HillBeverley H. Johnson - Institute for Patient- and Family-Centered CareNora Wells - Family VoicesBeverly Baker - Family VoicesRenee Davis - Drexel UniversityRenee Turchi - Drexel University
- Publication Details
- Medical care, v 54(7), pp 697-705
- Publisher
- Lippincott Williams & Wilkins
- Number of pages
- 9
- Grant note
- K23HL107614 / National Heart, Lung, and Blood Institute; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Heart Lung & Blood Institute (NHLBI)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Community Health and Prevention
- Web of Science ID
- WOS:000378061000009
- Scopus ID
- 2-s2.0-84964270329
- Other Identifier
- 991019167631904721
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Health Care Sciences & Services
- Health Policy & Services
- Public, Environmental & Occupational Health