Journal article
A National Research Agenda for the Transition of Youth With Autism
Pediatrics (Evanston), v 141(Suppl 4), pp S355-S361
01 Apr 2018
PMID: 29610417
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
In this article, we outline a national research agenda to improve the transition to adulthood among youth with autism. We synthesized the results from 5 interconnected sets of activities: (1) a scoping review of published autism research and research priority statements, (2) a series of key informant interviews with stakeholders, (3) a 2-day National Research Agenda meeting, (4) a modified Delphi survey of stakeholders, and (5) 2 formal reviews of published literature on autism and transition. We identified 2 overarching priorities to advance research about autism and transition: (1) increased focus on community-and systems-level factors that influence outcomes with population-level approaches to measuring outcomes and (2) greater involvement of people with autism in establishing research priorities, designing research studies, and producing study findings and recommendations. We discuss how the life course framework can guide future inquiry that addresses gaps in extant research.
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Details
- Title
- A National Research Agenda for the Transition of Youth With Autism
- Creators
- Paul T. Shattuck - Center for Autism and Related DisordersLynette Lau - Department of Pediatrics, Center for Healthier Children, Families & Communities, University of California, Los Angeles, Los Angeles, California.Kristy A. Anderson - Center for Autism and Related DisordersAlice A. Kuo - Department of Pediatrics, Center for Healthier Children, Families & Communities, University of California, Los Angeles, Los Angeles, California.
- Publication Details
- Pediatrics (Evanston), v 141(Suppl 4), pp S355-S361
- Publisher
- Amer Acad Pediatrics
- Number of pages
- 7
- Grant note
- Health Care Transitions Research Network for Autism Spectrum Disorder and Other Developmental Disabilities UA6MC27364 / Health Resources and Services Administration of the US Department of Health and Human Services
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000454741000012
- Scopus ID
- 2-s2.0-85044718491
- Other Identifier
- 991019168612704721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Pediatrics