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Accepted (AM)Open Access (License Unspecified), Open
Journal article
African-American caregivers' perspectives on aggressive behaviors in dementia
Dementia (London, England), v 18(7-8), pp 3036-3058
01 Oct 2019
PMID: 29578357
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Purpose Although African-American dementia caregivers report less upset and more confidence managing aggressive behaviors when compared to whites, their contextual experience remains unclear and this study explores that context. Methods Semi-structured interviews with 13 African-American family caregivers were analyzed using content analysis. Results Two themes emerged, "It's the disease horizontal ellipsis not the person" and "You got to pick your battles." "It's the disease horizontal ellipsis not the person," reframing aggressive behavior, included three sub-themes. Sometimes the person with dementia seemed like a stranger but caregivers remembered "In there somewhere is that person." Aggressive behavior made this perspective difficult as they reported, "Sometimes it's hard not to take it personal." Premorbid dyadic conflict made caregiving difficult but caregivers remembered they were "Not who they were then." "You got to pick your battles," reflecting cognitive and behavioral strategies, also included three sub-themes. Participants prioritized caregiving over other commitments by reminding themselves "I got to do what I gotta do." Preventing aggressive behaviors was most successful when "We didn't argue horizontal ellipsis we didn't insist" and caregivers remembered "Don't put her in a position to fail" when involving the person with dementia in activities.
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Details
- Title
- African-American caregivers' perspectives on aggressive behaviors in dementia
- Creators
- Bryan R. Hansen - Johns Hopkins UniversityNancy A. Hodgson - University of PennsylvaniaLaura N. Gitlin - Drexel University
- Publication Details
- Dementia (London, England), v 18(7-8), pp 3036-3058
- Publisher
- Sage
- Number of pages
- 23
- Grant note
- R01 AG041781; R01 AG049692 / NIA NIH HHS; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute on Aging (NIA)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- College of Nursing and Health Professions
- Web of Science ID
- WOS:000485953300034
- Scopus ID
- 2-s2.0-85044762781
- Other Identifier
- 991019168384804721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Gerontology