General & Internal Medicine Life Sciences & Biomedicine Medicine, General & Internal Public, Environmental & Occupational Health Science & Technology
Providing care for children with asthma can be demanding and time-intensive with far-reaching effects on caregivers' lives. Studies have documented childhood asthma symptom reductions and improved asthma-related quality of life (AQOL) with indoor allergen-reducing environmental interventions. Few such studies, however, have considered ancillary benefits to caregivers or other family members. Ancillary benefits could be derived from child health improvements and reduced caregiving burden or from factors such as improved living environments or social support that often accompanies intensive residential intervention efforts. As part of the Boston Healthy Public Housing Initiative (HPHI), a longitudinal single-cohort intervention study of asthmatic children, we examined trends in caregivers' quality of life related to their child's asthma (caregiver AQOL) using monthly Juniper Caregiver Asthma Quality of Life Questionnaires (AQLQ) for 32 primary caregivers to 42 asthmatic children aged 4 to 17 years. Longitudinal analyses were used to examine caregiver AQOL trends and their relationship to the child's AQOL, then to consider additional predictors of caregiver AQOL. Caregiver AQLQ improved significantly over the course of the study with overall improvements significantly correlated with child AQOL (p = 0.005). However, caregiver AQOL improved most in the months before environmental interventions, while children's AQOL improved most in the months following. Time trends in caregiver AQOL, controlling for child AQOL, were not explained by available social support or caregiver stress measures. Our findings suggest potential participation effects not adequately captured by standard measures. Future environmental intervention studies should more formally consider social support and participation effects for both children and caregivers.
Ancillary Benefits for Caregivers of Children with Asthma Participating in an Environmental Intervention Study to Alleviate Asthma Symptoms
Creators
Jane E. Clougherty - Harvard University
Laura D. Kubzansky - Harvard University
John D. Spengler - Harvard University
Jonathan I. Levy - Harvard University
Publication Details
Journal of urban health, v 86(2), pp 214-229
Publisher
Springer Nature
Number of pages
16
Grant note
W. K. Kellogg Foundation
MALHH0077-00 / U. S. Department of Housing and Urban Development's Office of Healthy Homes and Lead Hazard Control
American Lung Association
Jessie B. Cox Charitable Trust
Akira Yamaguchi Endowment
Ford Foundation
Boston Foundation
Resource Type
Journal article
Language
English
Academic Unit
Dana and David Dornsife School of Public Health; Drexel University; Environmental and Occupational Health
Web of Science ID
WOS:000263798000006
Scopus ID
2-s2.0-61449097433
Other Identifier
991020100090804721
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