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Assessing long-term quality of life and survivorship priorities in cervical cancer patients: a social media survey-based study
Journal article   Open access   Peer reviewed

Assessing long-term quality of life and survivorship priorities in cervical cancer patients: a social media survey-based study

Edward A. Joseph, Manasa Mula, Muhammad Muntazir Mehdi Khan and Casey J. Allen
Gynecologic oncology reports, v 63, 102031
01 Feb 2026
PMID: 41658264
url
https://doi.org/10.1016/j.gore.2026.102031View
Published, Version of Record (VoR) Open

Abstract

Long-term quality of life Survivorship priorities Value-based care Cervical Cancer
•Cervical cancer survivors report enduring persistent physical and mental quality of life deficits despite improved survival.•Survivors prioritize longevity and independence over financial concerns.•These insights underscore the importance of tailoring survivorship programs to evolving patient needs. We evaluated quality of life (QOL) and healthcare priorities among cervical cancer survivors. We utilized the validated Short Form 12 (SF-12) survey to assess QOL (focusing on physical [P-QOL] and mental well-being [M-QOL]) and care prioritization among cervical cancer patients. Respondents were asked how they prioritize the following healthcare priorities: overall survival (OS), emotional well-being (EWB), functional independence (FI), cost of healthcare (CC), and treatment experience (TE). Kendall’s coefficient of concordance (W) assessed agreement among respondents. We received 100 survey respondents, they were 45.5 ± 13.8 years old and 88% White. The most common diagnoses included squamous cell carcinoma (57.0%) and adenocarcinoma (23.0%). With moderate consensus (W = 0.340, p < 0.001), patients considered OS (1.93 ± 1.26) the most important healthcare priority, followed by FI (2.63 ± 1.11) and EWB (2.76 ± 1.10). Patients attributed the lowest rank to TE (3.23 ± 1.17) and CC (4.41 ± 1.15). Patients who received chemotherapy were more likely to rank FI (2.59 ± 1.05 chemotherapy vs 2.72 ± 1.28 no chemotherapy, p = 0.620) above EWB (2.80 ± 1.09 chemotherapy vs 2.63 ± 1.15 no chemotherapy, p = 0.528). Respondents who underwent surgery reported better P-QOL (46.94 ± 12.64 vs. 37.57 ± 11.63, p < 0.001) compared to non-surgically managed patients. Both M-QOL and P-QOL did not vary significantly throughout survivorship (P-QOL: 40.61 ± 12.76 at < 1 year vs 35.43 ± 12.57 at > 5 years, p = 0.200; M-QOL: 35.74 ± 13.65 at < 1 year vs 39.55 ± 17.74 at > 5 years; p = 0.637), and remained below that of the general population (p < 0.050). Cervical cancer survivors experience persistent deficits in both physical and mental well-being and consistently prioritized OS and FI, and less frequently cost considerations. This study emphasizes the importance of personalized survivorship care that evolves with patients’ changing priorities.

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
Web of Science research areas
Obstetrics & Gynecology
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