Journal article
Assessing parental attitudes toward genetic testing for childhood hearing loss: Before and after genetic consultation
American journal of medical genetics. Part A, v 143A(14), pp 1546-1553
15 Jul 2007
PMID: 17542006
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
We report on the development of a Genetic Attitude Assessment Tool (GAAT) to measure parental attitudes in contemplating genetic testing for childhood hearing loss, and to examine the differences in assessments made before and after genetic counseling. The GAAT tool was administered to a convenient sample of 119 parents of children with bilateral sensorineural hearing loss. The respondents completed the survey either before (n = 77) or after (n = 42) genetic counseling. Exploratory Factor Analysis was applied to identify and quantify the underlying psychosocial structure. Our results showed the validated 54-item GAAT instrument contains six subscales: (1) "test intention," (2) "beliefs in non-genetic causes of hearing loss," (3) "deferral of decision to undergo genetic testing," (4) "appropriate use of genetic testing results," (5) "beliefs in the benefits," and (6) "concerns about stigma." The respondents who answered the survey after genetic counseling had higher "test intention" (P = 0.017) and endorsed to a greater extent "beliefs in the benefits" (P < 0.001). They believed to a lesser extent that childhood hearing loss was due to "non-genetic causes" (P < 0.001) and were less inclined to prefer "decision deferral" (P = 0.031). Respondents who themselves had a hearing loss expressed a significantly weaker belief in "non-genetic causes" of hearing loss (P < 0.0001). In conclusion the validated GAAT instrument is responsive to changes in parental attitudes after genetic counseling. The GAAT may be used to monitor parental attitudes serially, to further understand how parental attitudes change from pre genetic counseling, post genetic counseling, to post test result disclosure.
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Details
- Title
- Assessing parental attitudes toward genetic testing for childhood hearing loss: Before and after genetic consultation
- Creators
- Yuelin Li - Memorial Sloan Kettering Cancer CenterAnnie G. Steinberg - Children's Hospital of PhiladelphiaLisa Bain - University of PennsylvaniaDinah Yaeger - Children's Hospital of PhiladelphiaAri Bieler - Children's Hospital of PhiladelphiaRachel Ewing - Children's Hospital of PhiladelphiaGirija Kaimal - Children's Hospital of PhiladelphiaIan Krantz - Children's Hospital of Philadelphia
- Publication Details
- American journal of medical genetics. Part A, v 143A(14), pp 1546-1553
- Publisher
- Wiley
- Number of pages
- 8
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Creative Arts Therapies
- Web of Science ID
- WOS:000247760800003
- Scopus ID
- 2-s2.0-34447271512
- Other Identifier
- 991019295180404721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Genetics & Heredity