Journal article
Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
Frontiers in psychiatry, v 12, pp 614102-614102
28 May 2021
PMID: 34122158
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated the knowledge and health service experiences of users and providers to generate new hypotheses and scientific investigations that would contribute to improvement in health care for autistic adults. An online survey designed for autistic adults, carers of autistic adults, and professionals in adult services was translated into 11 languages and distributed electronically by organizations and in-country adult service facilities in 2017; 522 autistic adults, 442 carers, and 113 professionals provided answers to the health questions. Professionals, the majority in non-medical services, appeared to be poorly informed about whether certain co-occurring conditions were more frequent in autistic adults than typical adults-especially some medical conditions, suicide attempts, accidents, and pain. A minority of autistic adults reported preventive health behaviors such as routine health check-ups. The majority of users and providers expressed the desire to make health care services more user-friendly for autistic adults. Among the three groups, <20% of responders knew an organization or clinician which has developed a way to monitor health, and prevent poor health, that works well for adults on the autism spectrum. The results point to means for better management of co-occurring conditions associated with autism in adulthood in order to reduce hospital admissions and potential areas of improvement in health and social services for autistic adults. Specifically, efforts should be focused on (1) professionals' education on risks for co-occurring conditions in autistic adults; (2) promoting preventive health behaviors; (3) making services user-friendly for autistic adults and their families; and (4) encouraging knowledge of good local services.
Metrics
Details
- Title
- Autistic Adult Health and Professional Perceptions of It: Evidence From the ASDEU Project
- Creators
- Martina Micai - Istituto Superiore di SanitàAntonio Ciaramella - Istituto Superiore di SanitàTommaso Salvitti - Istituto Superiore di SanitàFrancesca Fulceri - Istituto Superiore di SanitàLaura Maria Fatta - Istituto Superiore di SanitàLuise Poustka - Universitätsmedizin GöttingenRobert Diehm - Medical University of ViennaGeorgi Iskrov - Inst Rare Dis, Plovdiv, BulgariaRumen Stefanov - Inst Rare Dis, Plovdiv, BulgariaQuentin Guillon - Université Toulouse - Jean JaurèsBernadette Roge - Université Toulouse - Jean JaurèsAnthony Staines - Dublin City UniversityMary Rose Sweeney - Dublin City UniversityAndrew Martin Boilson - Dublin City UniversityThora Leosdottir - State Diagnost & Counseling Ctr, Kopavogur, IcelandEvald Saemundsen - State Diagnost & Counseling Ctr, Kopavogur, IcelandIrma Moilanen - Oulu University HospitalHanna Ebeling - University of OuluAnneli Yliherva - Oulu University HospitalMika Gissler - Karolinska InstitutetTarja Parviainen - Finnish Assoc Autism & Aspergers Syndrome, Helsinki, FinlandPekka Tani - University of HelsinkiRafal Kawa - University of WarsawAstrid Vicente - National Institute of Health Dr. Ricardo JorgeCelia Rasga - National Institute of Health Dr. Ricardo JorgeMagdalena Budisteanu - Victor (Japan)Ian Dale - The National Autistic SocietyCarol Povey - The National Autistic SocietyNoelia Flores - Universidad de SalamancaCristina Jenaro - Universidad de SalamancaMaria Luisa Monroy - Universidad de SalamancaPatricia Garcia Primo - Instituto de Salud Carlos IIITony Charman - King's College LondonSusanne Cramer - Aarhus UniversityChristine Kloster Warberg - Aarhus UniversityRicardo Canal-Bedia - Universidad de SalamancaManuel Posada - Instituto de Salud Carlos IIIMaria Luisa Scattoni - Istituto Superiore di SanitàDiana Schendel - Aarhus University
- Publication Details
- Frontiers in psychiatry, v 12, pp 614102-614102
- Publisher
- Frontiers Media Sa
- Number of pages
- 18
- Grant note
- 1S49; 2S57 / Italian Ministry of Health; Ministry of Health, Italy SANCO/2014/C2/035 / European Union, DGSANTE European Parliament
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000659900500001
- Scopus ID
- 2-s2.0-85107537705
- Other Identifier
- 991021463603004721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Psychiatry