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Barriers and facilitators to mammography among women with intellectual disabilities: a qualitative approach
Journal article   Open access   Peer reviewed

Barriers and facilitators to mammography among women with intellectual disabilities: a qualitative approach

Evelyn Arana-Chicas, Avat Kioumarsi, Amy Carroll-Scott, Philip M. Massey, Ann C. Klassen and Michael Yudell
Disability & society, v 35(8), pp 1290-1314
13 Sep 2020
PMID: 34408338
Featured in Collection :   UN Sustainable Development Goals @ Drexel
url
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8370097View
Accepted (AM)Open Access (License Unspecified) Open

Abstract

Life Sciences & Biomedicine Rehabilitation Science & Technology Social Sciences - Other Topics Social Sciences, Interdisciplinary Social Sciences
Although women with intellectual disabilities have the same breast cancer incidence rate as women without intellectual disabilities, they have fewer mammograms and higher mortality rates. Qualitative inquiry was employed to explore barriers and facilitators to mammography among this population. In-depth qualitative interviews were conducted with 30 women with intellectual disabilities and their caregivers in Philadelphia during 2015-2016. Thematic analysis was conducted using inductive and deductive coding. While results provide further evidence for prior research on barriers to mammography among women with intellectual disabilities (e.g. being unprepared, fear of the exam), this study generated novel barriers such as lack of breast ultrasound awareness, sedation failing to work, and lack of mammogram education in adult day programs, and novel facilitators such as extended family support and positive attitudes. Results support the need to address barriers and promote facilitators to improve the breast cancer screening experience among women with intellectual disabilities.

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
Web of Science research areas
Rehabilitation
Social Sciences, Interdisciplinary
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