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Communication Predictors of Patient and Companion Satisfaction with Alzheimer's Genetic Risk Disclosure
Journal article   Open access   Peer reviewed

Communication Predictors of Patient and Companion Satisfaction with Alzheimer's Genetic Risk Disclosure

Yue Guan, Debra L Roter, Lori H Erby, Jennifer L Wolff, Laura N Gitlin, J Scott Roberts, Robert C Green and Kurt D Christensen
Journal of health communication, v 23(8), pp 807-814
2018
PMID: 30325721
url
https://europepmc.org/articles/pmc6452435View
Accepted (AM)Open Access (License Unspecified) Open

Abstract

Adult Aged Aged, 80 and over Alzheimer Disease - genetics Communication Disclosure Family - psychology Female Friends - psychology Genetic Predisposition to Disease Health Care Surveys Humans Male Middle Aged Patient Satisfaction - statistics & numerical data Physician-Patient Relations Young Adult
The objective of this study was to identify how features of Alzheimer's disease (AD) genetic risk disclosure communication relate to patient and visit companion satisfaction. We conducted secondary analyses of 79 session recordings from the fourth REVEAL Study, a randomized-controlled trial of AD genetic risk disclosure among patients with mild cognitive impairment. Patient and companion satisfaction were ascertained from postdisclosure surveys. The Roter Interaction Analysis System (RIAS) was used to code triadic communication between the counselor, patient, and companion. High satisfaction was evident for 24% of patients (N = 19) and 48% of companions (N = 38). Multivariate logistic regressions showed that high patient satisfaction was associated with patients' expression of emotions (OR = 1.1, 95% CI: 1.0-1.1) and companions' questions about psychosocial and lifestyle topics (OR = 1.8, 95% CI: 1.1-2.8). High companion satisfaction was positively related to the RIAS overall patient-centeredness score for the session (OR = 4.0, 95% CI: 1.0-15.6) (all p-values <0.05). Communication predictors of patient and companion satisfaction reflect specific or summary indicators of patient-centeredness. Findings also suggest that visit companions positively influence patient satisfaction. The study results support the growing literature and policy attention directed toward delivering family-centered care.

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Collaboration types
Domestic collaboration
Web of Science research areas
Communication
Information Science & Library Science
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