Journal article
Communication Preferences of Parents and Caregivers of Children and Youth With Special Healthcare Needs During a Hypothetical Infectious Disease Emergency
Health security, v 20(6), pp 467-478
01 Nov 2022
PMID: 36459634
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Children and youth with special healthcare needs are at risk for severe consequences during infectious disease emergencies. Messages for parents and caregivers from trusted sources, via preferred channels, that contain the information they need, may improve health outcomes for this population. In this mixed methods study, we conducted a survey (N = 297) and 80 semistructured interviews, with 70 caregivers of children and youth and 10 young adults with special healthcare needs, between April 2018 and June 2019 in Pennsylvania. The survey presented 3 scenarios (ie, storm, disease outbreak, radiation event); the interviews included questions about storms and an outbreak. This article addresses only the disease outbreak data from each set. Participants were recruited through convenience samples from an urban tertiary care children's hospital and practices in a statewide medical home network. In this article, we summarize the preferred information sources, channels, and content needs of caregivers of children and youth with special healthcare needs during an infectious disease emergency. Nearly 84% of caregivers reported that they believe their child's doctor is the best source of information. Other preferred sources include medical experts (31%); the US Centers for Disease Control and Prevention (30%); friends, family, and neighbors (21%); and local or state health and emergency management (17%). Pediatric healthcare providers play an important role in providing information to parents and caregivers of children and youth with special healthcare needs during an infectious disease emergency. Public health agencies can establish health communication plans that integrate medical practices and other reliable sources to promote the dissemination of accurate information from trusted messengers.
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Details
- Title
- Communication Preferences of Parents and Caregivers of Children and Youth With Special Healthcare Needs During a Hypothetical Infectious Disease Emergency
- Creators
- Thomas J. Hipper - Drexel UniversityLeah Popek - Drexel Univ, Ctr Publ Hlth Readiness & Commun, Dornsife Sch Publ Hlth, Dept Environm & Occupat Hlth, Philadelphia, PA 19104 USARenee K. Davis - Drexel Univ, Dornsife Sch Publ Hlth, Dept Community Hlth & Prevent, Philadelphia, PA 19104 USARenee M. Turchi - Drexel UniversityPhilip M. Massey - Univ Arkansas, Dept Hlth Human Performance & Recreat, Ctr Publ Hlth & Technol, Fayetteville, AR 72701 USAJennifer Lege-Matsuura - Drexel Univ, Drexel Univ Lib, Philadelphia, PA 19104 USAKeri M. Lubell - Response Biomedical (Canada)Laura Pechta - Ctr Dis Control & Prevent, Div Global Hlth Protect, Ctr Global Hlth, Atlanta, GA USALisa Briseno - Response Biomedical (Canada)Dale A. Rose - Ctr Dis Control & Prevent, Div Bacterial Dis, Natl Ctr Immunizat & Resp Dis, Atlanta, GA USAKevin Chatham-Stephens - Ctr Dis Control & Prevent, Natl Ctr Birth Defects & Dev Disabil, Atlanta, GA USARebecca T. Leeb - Ctr Dis Control & Prevent, Natl Ctr Birth Defects & Dev Disabil, Atlanta, GA USAEsther Chernak - Drexel Univ, Dornsife Sch Publ Hlth, Ctr Publ Hlth Readiness & Commun, 3215 Market St Nesbitt Hall 615, Philadelphia, PA 19104 USA
- Publication Details
- Health security, v 20(6), pp 467-478
- Publisher
- Mary Ann Liebert, Inc
- Number of pages
- 12
- Grant note
- 200-2016-92427 / CDC; United States Department of Health & Human Services; Centers for Disease Control & Prevention - USA
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- DUL Services; Community Health and Prevention; Environmental and Occupational Health
- Web of Science ID
- WOS:000893183900001
- Scopus ID
- 2-s2.0-85143917647
- Other Identifier
- 991020547317004721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Public, Environmental & Occupational Health