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Comparative Effectiveness Research and Children With Cerebral Palsy: Identifying a Conceptual Framework and Specifying Measures
Journal article   Open access   Peer reviewed

Comparative Effectiveness Research and Children With Cerebral Palsy: Identifying a Conceptual Framework and Specifying Measures

Mary E. Gannotti, Mary Law, Amy F. Bailes, Margaret E. O'Neil, Uzma Williams, Briano DiRezze and Expert Panel
Pediatric physical therapy, v 28(1), pp 58-69
01 Mar 2016
PMID: 27088688
url
https://doi.org/10.1097/pep.0000000000000203View
Published, Version of Record (VoR)Maybe Open Access (Publisher Bronze) Open

Abstract

Life Sciences & Biomedicine Pediatrics Rehabilitation Science & Technology
Purpose: A step toward advancing research about rehabilitation service associated with positive outcomes for children with cerebral palsy is consensus about a conceptual framework and measures. Methods: A Delphi process was used to establish consensus among clinicians and researchers in North America. Results: Directors of large pediatric rehabilitation centers, clinicians from large hospitals, and researchers with expertise in outcomes participated (N = 18). Andersen's model of health care utilization framed outcomes: consumer satisfaction, activity, participation, quality of life, and pain. Measures agreed upon included Participation and Environment Measure for Children and Youth, Measure of Processes of Care, PEDI-CAT, KIDSCREEN-10, PROMIS Pediatric Pain Interference Scale, Visual Analog Scale for pain intensity, PROMIS Global Health Short Form, Family Environment Scale, Family Support Scale, and functional classification levels for gross motor, manual ability, and communication. Conclusions: Universal forms for documenting service use are needed. Findings inform clinicians and researchers concerned with outcome assessment.

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8 citations in Scopus

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#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
International collaboration
Web of Science research areas
Pediatrics
Rehabilitation
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