Journal article
Comparing the priorities of parents and young people with cerebral palsy
Disability and rehabilitation, Vol.33(17-18), pp.1650-1658
2011
PMID: 21192775
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Purpose. Adolescence is a period of change and transition that may pose unique challenges for young people with cerebral palsy (CP). We compared statements of priorities, i.e. what adolescents (13-17) and youth (18-21) and their parents would like to be able to do to enable greater activity and participation.
Methods. Participants were 198 parents and 135 young people with CP (45%% males) from seven Children's Hospitals in the United States. The interviews were structured using The Canadian Occupational Performance Measure. Priority statements were categorised as Adult Tasks, Biology, Self-Identity or Physical Activity.
Results. All parents identified more priorities for Biology and Adult Tasks (p < 0.001). Adolescents identified the fewest priorities for Self-Identity (p < 0.01). Youth identified, in descending order of frequency, priorities in Adult Tasks, Biology, Self-Identity and Physical Activity (p < 0.05). In the parent-young people dyads when disagreements occurred, Self-Identity issues were identified more often by parents (p < 0.05) and priorities for Physical Activity were identified more often by young people (p < 0.01).
Conclusions. The shared and differing priorities of parents and young people with CP may reflect different roles, perceptions and experiences. The findings have implications for healthcare professionals, providing a framework to compare and contrast the priorities of young people and their parents.
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Details
- Title
- Comparing the priorities of parents and young people with cerebral palsy
- Creators
- Jill Maggs - 1Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USARobert Palisano - 1Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USALisa Chiarello - 1Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USAMargo Orlin - 1Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USAHui-ju Chang - 1Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USAMarcia Polansky - 2School of Public Health, Drexel University, Philadelphia, Pennsylvania 19102, USA
- Publication Details
- Disability and rehabilitation, Vol.33(17-18), pp.1650-1658
- Publisher
- Informa Healthcare
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]; Physical Therapy (and Rehabilitation Sciences)
- Identifiers
- 991014878181004721
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