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Connecting communities to health research: Development of the Project CONNECT minority research registry
Journal article   Open access   Peer reviewed

Connecting communities to health research: Development of the Project CONNECT minority research registry

Melissa A. Green, Mimi M. Kim, Sharrelle Barber, Abedowale A. Odulana, Paul A. Godley, Daniel L. Howard and Giselle M. Corbie-Smith
Contemporary clinical trials, v 35(1), pp 1-7
May 2013
DOI: https://doi.org/10.1016/j.cct.2013.01.001
PMID: 23340183
Featured in Collection :   UN Sustainable Development Goals @ Drexel
url
https://europepmc.org/articles/pmc3780788View
Accepted (AM)Open Access (License Unspecified),  Open

Abstract

Clinical trials Diversity Ethnic minorities Recruitment Research registry
Prevention and treatment standards are based on evidence obtained in behavioral and clinical research. However, racial and ethnic minorities remain relatively absent from the science that develops these standards. While investigators have successfully recruited participants for individual studies using tailored recruitment methods, these strategies require considerable time and resources. Research registries, typically developed around a disease or condition, serve as a promising model for a targeted recruitment method to increase minority participation in health research. This study assessed the tailored recruitment methods used to populate a health research registry targeting African-American community members. We describe six recruitment methods applied between September 2004 and October 2008 to recruit members into a health research registry. Recruitment included direct (existing studies, public databases, community outreach) and indirect methods (radio, internet, and email) targeting the general population, local universities, and African American communities. We conducted retrospective analysis of the recruitment by method using descriptive statistics, frequencies, and chi-square statistics. During the recruitment period, 608 individuals enrolled in the research registry. The majority of enrollees were African American, female, and in good health. Direct and indirect methods were identified as successful strategies for subgroups. Findings suggest significant associations between recruitment methods and age, presence of existing health condition, prior research participation, and motivation to join the registry. A health research registry can be a successful tool to increase minority awareness of research opportunities. Multi-pronged recruitment approaches are needed to reach diverse subpopulations.

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6 Record Views
15 citations in Web of Science
15 citations in Scopus

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
Web of Science research areas
Medicine, Research & Experimental
Pharmacology & Pharmacy
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