Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs
Travonia B Hughes, Betty S Black, Marilyn Albert, Laura N Gitlin, Deirdre M Johnson, Constantine G Lyketsos and Quincy M Samus
International psychogeriatrics, v 26(11), pp 1875-1883
Aged Aged, 80 and over Baltimore - epidemiology Caregivers - psychology Caregivers - statistics & numerical data Cost of Illness Cross-Sectional Studies Dementia - therapy Female Health Services Needs and Demand - statistics & numerical data Humans Male Surveys and Questionnaires
This study examines the relationship of unmet dementia-related care needs of community-dwelling persons, and their caregivers (CGs), to measures of caregiver burden.
Cross-sectional baseline data were analyzed from participants in a dementia care coordination trial of community-residing persons with dementia (PWD) (n = 254) and their caregivers (n = 246). Participants were recruited from Northwest Baltimore, Maryland. The Zarit Burden Inventory (ZBI) was used to measure subjective caregiver burden. Objective burden was measured by estimating the total hours per week spent doing things for the PWD and/or how many hours CGs missed paid work in the prior month due to caregiving responsibilities. The Johns Hopkins Dementia Care Needs Assessment was used to identify unmet dementia-related care needs. Bivariate and multivariate linear regressions examined the relationship of unmet needs, demographic, clinical, or functional characteristics with caregiver burden measures.
In adjusted multivariable models, patient neuropsychiatric symptoms and caregiver unmet emotional needs explained 22% of the variance in ZBI scores. In adjusted multivariable models, caregiver need for respite, patient functional dependency, and caregiver unmet specialty medical needs explained 26% of the variance in the hours per week spent caregiving. PWD's level of functional dependency was the sole correlate of missed time at work, explaining 11% of the variance.
Addressing potentially modifiable unmet caregiver needs may reduce subjective and objective caregiver burden.
Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs
Creators
Travonia B Hughes - Johns Hopkins Medicine
Betty S Black - Johns Hopkins Medicine
Marilyn Albert - Johns Hopkins Medicine
Laura N Gitlin - Johns Hopkins University
Deirdre M Johnson - Johns Hopkins Medicine
Constantine G Lyketsos - Johns Hopkins Medicine
Quincy M Samus - Johns Hopkins Medicine
Publication Details
International psychogeriatrics, v 26(11), pp 1875-1883