Correlation between child and parental perceptions of health-related quality of life in epilepsy using the PedsQL.v4.0 measurement model

Zulfi Haneef; Mitzie L Grant; Ignacio Valencia; Elizabeth F Hobdell; Sanjeev V Kothare; Agustin Legido; Divya Khurana

doi:10.1684/epd.2010.0344

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Correlation between child and parental perceptions of health-related quality of life in epilepsy using the PedsQL.v4.0 measurement model

Journal article

Open access

Correlation between child and parental perceptions of health-related quality of life in epilepsy using the PedsQL.v4.0 measurement model

Zulfi Haneef, Mitzie L Grant, Ignacio Valencia, Elizabeth F Hobdell, Sanjeev V Kothare, Agustin Legido and Divya Khurana

Epileptic disorders, v 12(4), pp 275-282

Dec 2010

DOI: https://doi.org/10.1684/epd.2010.0344

PMID: 21081305

Featured in Collection : UN Sustainable Development Goals @ Drexel

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Abstract

Adolescent

Analysis of Variance

Child

Child, Preschool

Chronic Disease

Epilepsy - psychology

Female

Health Status

Humans

Male

Parents - psychology

Proxy - psychology

Psychometrics

Quality of Life

Self-Assessment

Social Class

Surveys and Questionnaires - standards

Health-related quality-of-life measures in childhood epilepsy are typically limited to a particular functional domain, specific age group, parent proxy-report, or child self-report. Generic health-related quality-of-life instruments in paediatric epilepsy comparing child self-reports with simultaneous parent proxy-reports have not been previously investigated. A previously validated generic questionnaire, the Pediatric Quality of Life version 4 (PedsQL.v4.0), was used to prospectively assess parental and child perceptions of health-related quality of life in 100 children with epilepsy. The correlation between child and parental health-related quality-of-life perceptions across all domains was excellent (p < 0.001) and both were significantly lower than those for healthy controls (p < 0.001). Parents' perceptions of their children's health-related quality of life were lower than those for other chronic illnesses (p < 0.001), especially for refractory epilepsy. The presence of neurological or psychiatric comorbidities also had an adverse impact on health-related quality of life. The PedsQL.v4.0 measures health-related quality of life from both the parent's and child's perspective. Ease of use makes this instrument attractive for routine clinical use.

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41 citations in Scopus

Details

Title: Correlation between child and parental perceptions of health-related quality of life in epilepsy using the PedsQL.v4.0 measurement model
Creators: Zulfi Haneef - Drexel University
Mitzie L Grant - Drexel University
Ignacio Valencia - Drexel University
Elizabeth F Hobdell - St. Christopher's Hospital for Children
Sanjeev V Kothare - Children’s Hospital
Agustin Legido - Drexel University
Divya Khurana - Drexel University
Publication Details: Epileptic disorders, v 12(4), pp 275-282
Resource Type: Journal article
Language: English
Academic Unit: Psychiatry; Pediatrics
Web of Science ID: WOS:000285634300005
Scopus ID: 2-s2.0-79952459530
Other Identifier: 991019168076704721

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Collaboration types: Domestic collaboration
Web of Science research areas: Clinical Neurology