Journal article
Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of cardiac surgery
Cardiology in the young, v 18(S2), pp 101-115
01 Dec 2008
PMID: 19063780
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
This review includes a brief discussion, from the perspective of cardiac surgeons, of the rationale for creation and maintenance of multi-institutional databases of outcomes of congenital heart surgery, together with a history of the evolution of such databases, a description of the current state of the art, and a discussion of areas for improvement and future expansion of the concept. Five fundamental areas are reviewed: nomenclature, mechanism of data collection and storage, mechanisms for the evaluation and comparison of the complexity of operations and stratification of risk, mechanisms to ensure the completeness and accuracy of the data, and mechanisms for expansion of the current capabilities of databases to include comparison and sharing of data between medical subspecialties. This review briefly describes several European and North American initiatives related to databases for pediatric and congenital cardiac surgery the Congenital Database of The European Association for Cardio-Thoracic Surgery, the Congenital Database of The Society of Thoracic Surgeons, the Pediatric Cardiac Care Consortium, and the Central Cardiac Audit Database in the United Kingdom. Potential means of approaching the ultimate goal of acquisition of long-term follow-up data, and input of this data over the life of the patient, are also considered.
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Details
- Title
- Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of cardiac surgery
- Creators
- Marshall Lewis Jacobs - Drexel UniversityJeffrey Phillip Jacobs - 2The Congenital Heart Institute of Florida (CHIF), Division of Thoracic and Cardiovascular Surgery, All Children’s Hospital and Children’s Hospital of Tampa, University of South Florida College of Medicine, Cardiac Surgical Associates (CSA), Saint Petersburg and Tampa, Florida, United States of AmericaRodney C.G. Franklin - 3Paediatric Cardiology Directorate, Royal Brompton & Harefield NHS Trust, Harefield, Middlesex, London, United KingdomConstantine Mavroudis - Northwestern UniversityFrancois Lacour-Gayet - 5The Children’s Hospital, University of Colorado School of Medicine, Denver, Colorado, United States of AmericaChristo I. Tchervenkov - McGill University Health CentreHal Walters - Wayne State UniversityEmile A. Bacha - Harvard Medical SchoolDavid Robinson Clarke - 5The Children’s Hospital, University of Colorado School of Medicine, Denver, Colorado, United States of AmericaJ. William Gaynor - Children's Hospital of PhiladelphiaThomas L. Spray - Children's Hospital of PhiladelphiaGiovanni Stellin - 10Pediatric Cardiac Surgery Unit – University of Padova Medical School, Padova, ItalyTjark Ebels - 11Groningen University Medical Centre, Groningen, The NetherlandsBohdan Maruszewski - 12The Children’s Memorial Health Institute, Department of Cardiothoracic Surgery, Warsaw, PolandZdzislaw Tobota - 12The Children’s Memorial Health Institute, Department of Cardiothoracic Surgery, Warsaw, PolandHiromi Kurosawa - Tokyo Women's Medical UniversityMartin Elliott - Great Ormond Street Hospital
- Publication Details
- Cardiology in the young, v 18(S2), pp 101-115
- Publisher
- Cambridge University Press
- Number of pages
- 15
- Resource Type
- Journal article
- Language
- English
- Web of Science ID
- WOS:000266381300007
- Scopus ID
- 2-s2.0-60849105841
- Other Identifier
- 991021901414604721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Cardiac & Cardiovascular Systems
- Pediatrics