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Journal article
Diagnosis and the practices of patienthood: How diagnostic journeys shape illness experiences
Sociology of health & illness
27 Jan 2023
PMID: 36707922
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Sociologists have a rich history of studying the process of diagnosis and how people experience illness. Yet, the sociology of diagnosis and illness experience literatures have seldom been fully integrated. Instead, these literatures highlight one element of the illness journey, wherein scholars either primarily study diagnostic processes and categories or people's illness experiences. Drawing on empirical studies that examine diagnosis and experiences of illness in varied settings (diagnosis during breast cancer surveillance, diagnosis and experience of autoimmune illness and incarcerated women's experiences of diagnoses and illness), in this article we build on our concept of regimes of patienthood to explain how diagnostic journeys, and the relations and power dynamics that manifest during this time, shape the illness experience and practices of patienthood. We construct a classification of diagnostic processes grounded in our empirical research that span (1) sudden diagnoses, (2) long, changing diagnostic journeys and (3) diagnostic journeys marked by disbelief and denial of care. Our findings demonstrate how diagnostic journeys and illness experiences are intertwined, with different diagnostic pathways impacting how illness is experienced. Analysing these categories collectively demonstrates that diagnostic journeys, while heterogenous, shape the practices that patients develop to manage health conditions and navigate unequal health-care encounters.
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Details
- Title
- Diagnosis and the practices of patienthood: How diagnostic journeys shape illness experiences
- Creators
- Melanie Jeske - University of ChicagoJennifer James - University of California, San FranciscoKelly Joyce - Drexel University
- Publication Details
- Sociology of health & illness
- Publisher
- Wiley
- Number of pages
- 17
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Sociology
- Web of Science ID
- WOS:000919013700001
- Scopus ID
- 2-s2.0-85147366890
- Other Identifier
- 991020546590304721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Public, Environmental & Occupational Health
- Social Sciences, Biomedical
- Sociology