Logo image
Back
Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy
Journal article   Peer reviewed

Ease of Caregiving for Children: A measure of parent perceptions of the physical demands of caregiving for young children with cerebral palsy

Kimberly D. Ward, Lisa A. Chiarello, Doreen J. Bartlett, Robert J. Palisano, Sarah Westcott McCoy and Lisa Avery
Research in developmental disabilities, v 35(12), pp 3403-3415
Dec 2014
DOI: https://doi.org/10.1016/j.ridd.2014.08.023
PMID: 25200675
Featured in Collection :   UN Sustainable Development Goals @ Drexel

Abstract

Caregiving Cerebral palsy Measure Parents
•The Ease of Caregiving for Children is a valid and reliable parent report measure.•Ease of caregiving varied by child age for parents of children without motor delay.•Ease of caregiving did not vary by child age for parents of children with CP.•Parents of children with less motor ability reported more difficulty in caregiving.•Rasch analysis resulted in a logical hierarchical ordering of items by difficulty. The Ease of Caregiving for Children is a parent-completed measure of how difficult it is for them to safely help their children participate in activities of daily living. The objectives of this study were to determine the internal consistency, test–retest reliability, and construct validity (known groups methods) of the Ease of Caregiving for Children and create an interval-level scale. Participants included 429 parents of children with cerebral palsy (CP) and 110 parents of children without motor delay. Children ranged in age from 18 to 60 months. Parents completed the Ease of Caregiving for Children and therapists assessed children's gross motor function. The Rasch model of item response analysis was used to create an interval-level scale. Results indicated high internal consistency and acceptable test–retest reliability. Ease of caregiving varied by children's ages for parents of children without motor delay, however there was no significant difference by age for parents of children with CP. Parents of children with less gross motor ability reported more difficulty in caregiving than parents of children with higher gross motor ability. Rasch analysis for children with CP resulted in a hierarchical ordering of items by difficulty with good fit and logical ordering. Findings support the Ease of Caregiving for Children as a reliable and valid measure of parents’ perceptions of their difficulty to safely assist their children to perform activities of daily living. The measure should enable health care providers to assess and provide interventions that address families’ needs in caring for their children with CP.

Metrics

14 Record Views
9 citations in Web of Science
10 citations in Scopus

Details

UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

InCites Highlights

Data related to this publication, from InCites Benchmarking & Analytics tool:

Collaboration types
Domestic collaboration
International collaboration
Web of Science research areas
Education, Special
Rehabilitation
Logo image