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Journal article
Embedding Caregiver Support within Adult Day Services: Outcomes of a Multi-site Trial
The Gerontologist, v 64(4)
07 Aug 2023
PMID: 37549428
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
<p>Background and Objectives Adult day services (ADS) provide quality-of-life benefits to people with dementia, but few provide systematic caregiver support. We report outcomes of a multisite, national trial testing a staff-delivered caregiver program, ADS Plus.Research Design and Methods Cluster-randomized trial involving 34 ADS: 18 sites provided ADS (controls) and 16 provided ADS and ADS Plus (intervention). Trained staff met with caregivers to provide dementia education, support/validation, referrals/linkages, and strategies for care challenges and self-care over 12 months. Main outcomes included depressive symptoms (Center for Epidemiological Studies Depression Scale [CES-D]) and well-being at 6 and 12 months, and client attendance over 12 months.Results Of 203 caregivers (Intervention = 102; Control = 101), 5.9% at 3 months, 12.8% at 6 months, and 22.7% at 12 months were lost to follow-up. Caregivers were predominantly female (80.3%), with 76.4% identifying as White/Caucasian, 14.8% Black/African American, and 12.3% Hispanic/Latino. Most (88.2%) had >= college education and were 65.0 years old (SD = 13.46). For those with 6-month data, 40.4% control and 40.2% ADS Plus caregivers had depressed symptoms (>= 16 CES-D) at baseline. By 6 months, 43.6% control versus 34.2% ADS Plus caregivers had >= 16 scores (odds ratio = 0.38, p = .072). By 12 months, after covariate adjustments, ADS Plus caregivers reported reduced total depression scores versus controls (p = .013) and lower depressed affect scores (p = .015). Of 18 sites providing 12-month client attendance data, 9 intervention sites reported 126.05 days attended versus 78.49 days for 9 control sites (p = .079).Discussion and Implications Compared with ADS alone, by 12 months, ADS Plus improved caregiver mood and increased ADS utilization by 60.6%. Results support ADS staff delivering evidence-based caregiver support to enhance ADS benefits.Clinical Trial Registration NCT02927821</p>
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Details
- Title
- Embedding Caregiver Support within Adult Day Services: Outcomes of a Multi-site Trial
- Creators
- Laura N Gitlin (Corresponding Author) - Drexel University, College of Nursing and Health ProfessionsDavid L Roth - Johns Hopkins UniversityKatherine Marx - Johns Hopkins Bayview Medical CenterLauren J Parker - National Institute on AgingSokha Koeuth - Drexel University, College of Nursing and Health ProfessionsHolly Dabelko-Schoeny - The Ohio State UniversityKeith Anderson - University of MontanaJoseph E Gaugler - University of Minnesota
- Publication Details
- The Gerontologist, v 64(4)
- Publisher
- Oxford University Press
- Number of pages
- 11
- Grant note
- National Institute on Aging: R01 AG049692
This work was supported by a grant from the National Institute on Aging (R01 AG049692).
- Resource Type
- Journal article
- Language
- Japanese
- Academic Unit
- College of Nursing and Health Professions
- Web of Science ID
- WOS:001074665200001
- Scopus ID
- 2-s2.0-85188175380
- Other Identifier
- 991020843619204721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Gerontology