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Journal article
Embedding caregiver support in community-based services for older adults: A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus)
Contemporary clinical trials, v 83, pp 97-108
Aug 2019
PMID: 31238172
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
There are over five million people in the United States living with dementia. Most live at home and are cared for by family. These family caregivers often assume care responsibilities without education about the disease, skills training, or support, and in turn become at risk for depression, burden, and adverse health outcomes when compared to non-dementia caregivers. Despite over 200 caregiver interventions with proven benefits, many caregivers lack access to these programs. One approach to enhance access is to embed evidence-based caregiver support programs in existing community-based services for people with dementia such as adult day services (ADS). Here we describe the protocol for an embedded pragmatic trial designed to augment standard ADS known as ADS Plus. ADS Plus provides family caregivers with support via education, referrals, and problem-solving techniques over 12 months, and is delivered on-site by existing ADS staff. Embedding a program in ADS requires an understanding of outcomes and implementation processes in that specific context. Thus, we deploy a hybrid design involving a cluster randomized two-group trial to evaluate treatment effects on caregiver wellbeing, ADS utilization, as well as nursing home placement. We describe implementation practices in 30 to 50 geographically and racially/ethnically diverse participating sites.
Clinical trial registration #: NCT02927821
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Details
- Title
- Embedding caregiver support in community-based services for older adults: A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus)
- Creators
- Laura N. Gitlin - Drexel UniversityKatherine Marx - Johns Hopkins UniversityDaniel Scerpella - Johns Hopkins School of Nursing, Center for Innovative Care in Aging, 901 North Broadway, 2nd Floor, Baltimore, MD 21205, United States of AmericaHolly Dabelko-Schoeny - College of Social Work, 207 Stillman Hall, 1947 College Rd N., Columbus, OH 43210, United States of America.Keith A. Anderson - University of MontanaJin Huang - Johns Hopkins UniversityLaura Pizzi - University Ernest Mario School of Pharmacy, Center for Health Outcomes, Policy, and Economics, 160 Frelinghuysen Road - Suite 417, Piscataway, NJ 08854, United States of America.Eric Jutkowitz - Brown University School of Public Health, Department of Health Services, Policy & Practice, BoxG-S121 (6), 121 S Main Street, Providence, RI 02912, United States of America.David L. Roth - Johns Hopkins UniversityJoseph E. Gaugler - University of Minnesota
- Publication Details
- Contemporary clinical trials, v 83, pp 97-108
- Publisher
- Elsevier
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- College of Nursing and Health Professions
- Web of Science ID
- WOS:000479021800012
- Scopus ID
- 2-s2.0-85068803434
- Other Identifier
- 991019168891804721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Medicine, Research & Experimental
- Pharmacology & Pharmacy