Journal article
Establishing Best Practices in Telehealth Care for Adults with Developmental Disabilities in the United States: An e-Delphi Study
Telemedicine journal and e-health, v 30(8), pp e2373-e2382
01 Aug 2024
PMID: 38919995
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background: Telehealth care is now a key element of mainstream health care since the COVID-19 pandemic, with all types of health care providers joining the digital revolution. As a population experiencing health care disparities, adults with developmental disabilities and their supporters have described variable experiences with telehealth care that contribute to overall care quality and health outcomes.Methods: This e-Delphi study established consensus on best practices in telehealth care for adults with developmental disabilities in the United States. Online surveys and videoconferencing interviews were conducted with 44 expert panelists with experience with telehealth care and developmental disabilities, including adults with developmental disabilities, family members, direct support professionals, nurses, and health care providers.Results: Three rounds of surveys resulted in a set of 9 guidelines consisting of 42 items. The guidelines addressed 1) appropriate situations for telehealth care, 2) communication needs and preferences, 3) support person collaboration, 4) education and anticipatory guidance, 5) reminders, 6) coordination of care, 7) equitable and fair access, 8) privacy and safety, and 9) evidence-based practice.Conclusion: Health care providers can adopt these best practice guidelines to ensure telehealth care is provided equitably and safely to adults with developmental disabilities. Policy advocacy is needed for the uptake of these guidelines and for health care providers and adults with developmental disabilities to access the resources needed for safe and effective telehealth care use.
Metrics
Details
- Title
- Establishing Best Practices in Telehealth Care for Adults with Developmental Disabilities in the United States: An e-Delphi Study
- Creators
- Melissa L. Desroches - University of Massachusetts DartmouthJudith Stych - Rush UniversityGregory Bannett - Philadelphia Autism Project, Philadelphia, PA USARachel Guttentag - Philadelphia Autism Project, Philadelphia, PA USASarah H. Ailey - Rush Univ, Med Ctr, Chicago, IL USAKathleen Fisher - Drexel University, [Retired Faculty]
- Publication Details
- Telemedicine journal and e-health, v 30(8), pp e2373-e2382
- Publisher
- Mary Ann Liebert, Inc
- Number of pages
- 10
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing; [Retired Faculty]
- Web of Science ID
- WOS:001254122200001
- Scopus ID
- 2-s2.0-85197848055
- Other Identifier
- 991021889471604721
UN Sustainable Development Goals (SDGs)
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Health Care Sciences & Services