Journal article
Evaluating the National Academy of Science Engineering and Medicine's recommended sexual orientation and gender identity questions: community perceptions
Supportive care in cancer, v 34(1), 8
04 Dec 2025
PMID: 41345789
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
The National Academy of Science Engineering and Medicine (NASEM) developed items to collect sexual orientation and gender identity (SOGI) in healthcare settings to harmonize collection of these data and address disparities often experienced by sexual and gender minorities (SGM) (LGBTQAI+). This study tested wording of SOGI items among the SGM Community.
Individuals were recruited to participate in an interview about the NASEM SOGI items. Eligible participants identified as SGM, lived within the catchment area of an NYC academic medical center, had a history of cancer, or were caregivers of a person with cancer. Interviews were audio-recorded, transcribed, and qualitatively coded.
Thirty-eight SGM individuals participated. The majority disliked the options for sexual orientation (SO) and gender identity (GI) but did find one they would choose. For SO, participants thought options like queer, pansexual, and asexual were missing, and for GI, participants said non-binary and transgender category (transgender man, transgender woman) were needed. Half said they had no concerns about disclosing SOGI information on medical intake forms and others reported preferring knowing why it was needed and who would have access. Several expressed worry about their safety upon disclosure of SOGI. Respondents cited being less likely to disclose SOGI if there was an offensive question on intake form (e.g., spouse instead of partner) or if there were no privacy assurances. Almost all expected reported SOGI to be reflected in their oncology healthcare.
The NASEM questions need improvement. To improve trust and encourage disclosure, clinicians and clinics should improve the options for SOGI data collection and take steps to ensure privacy is addressed.
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Details
- Title
- Evaluating the National Academy of Science Engineering and Medicine's recommended sexual orientation and gender identity questions: community perceptions
- Creators
- Margot Bellon - Drexel UniversityAlexandr Trifonov - NYU Langone’s Laura and Isaac Perlmutter Cancer CenterSruthi Kunamneni - Rutgers, The State University of New JerseyDona Jalili - New York UniversityKevin Moore - New York University Langone Orthopedic HospitalMegan Haseltine - NYU Langone’s Laura and Isaac Perlmutter Cancer CenterRachel Nelson - NYU Langone’s Laura and Isaac Perlmutter Cancer CenterMarina Stasenko - NYU Langone’s Laura and Isaac Perlmutter Cancer CenterN F N Scout - National LGBT Cancer NetworkJason Domogauer - New York UniversityGwendolyn P Quinn (Corresponding Author) - New York University
- Publication Details
- Supportive care in cancer, v 34(1), 8
- Publisher
- Springer Nature
- Grant note
- P30 CA016087 / NCI NIH HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- College of Medicine
- Web of Science ID
- WOS:001631037600003
- Scopus ID
- 2-s2.0-105023912467
- Other Identifier
- 991022196572204721
UN Sustainable Development Goals (SDGs)
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Source: SDGs in the Output
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Health Care Sciences & Services
- Oncology
- Rehabilitation