Journal article
"Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth
Research in autism spectrum disorders, v 118, 102482
Oct 2024
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
This study examined the challenges faced by transition age autistic youth in accessing Medicaid services, considering the historical focus on children in autism research and services. The study aimed to explore Medicaid enrollment and support for this population.
The study involved Medicaid and Protection & Advocacy (P&A) representatives from states with varying performance levels in eligibility, access, and service use. Discussions with experts focused on waivers, Early, Periodic, Screening, Detection, and Treatment (EPSDT), and barriers to service access.
The findings highlighted the need to improve service access for transition age autistic youth. States identified the importance of maximizing EPDST utilization before aging out of childhood systems and pursuing waiver enrollment. These insights emphasized the significance of addressing service gaps during the transition to adulthood.
The study's implications for practice are substantial. Policymakers and service providers must acknowledge the limitedservice access for autistic individuals as they transition from child systems. The study emphasized the value of strategies like maximizing EPDST utilization and pursuing waivers to ensure ongoing support for autistic youth during their transition to adulthood. By addressing these challenges, practitioners can better meet the needs of transition age autistic individuals and facilitate their access to essential services.
•1915(c) HCBS waivers were most commonly used to support transition age autistic youth.•EPSDT was an infrequently utilized service pathway.•Utilizing EPSDT prior to 1915(c) HCBS waivers can enhance service access for transition age autistic youth.
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Details
- Title
- "Everyone should at least get a Kia": Policymaker perspectives on equity of Medicaid among transition age autistic youth
- Creators
- Kaitlin H. Koffer Miller - Drexel UniversityDylan S. Cooper - Drexel UniversitySha Tao - Drexel UniversityDavid S. Mandell - University of PennsylvaniaRobert I. Field - Drexel UniversityLindsay L. Shea - Drexel University
- Publication Details
- Research in autism spectrum disorders, v 118, 102482
- Publisher
- Elsevier; London
- Number of pages
- 10
- Grant note
- National Institute of Mental Health: 5R01MH117653
This work was supported by the National Institute of Mental Health, Grant/Award Number: 5R01MH117653.
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute; Thomas R. Kline School of Law
- Web of Science ID
- WOS:001329658700001
- Scopus ID
- 2-s2.0-85205230369
- Other Identifier
- 991021906610004721
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Education, Special
- Psychiatry
- Psychology, Developmental
- Rehabilitation