Journal article
Evidence from the Autism Transitions Research Project (2017–2022): Capstone review and services research recommendations
Autism research, v 16(3), pp 480-496
09 Jan 2023
PMID: 36622799
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Few funding sources have explicitly supported systems-wide research to identify mechanisms for improving access, service delivery, outcomes and wellbeing for autistic transition-age youth and young adults. We aimed to integrate findings from research produced through a five-year federal Autism Transition Research Project (ATRP) cooperative agreement. This capstone review sought to: (1) map the body of scientific evidence that emerged from this federal award, and (2) identify remaining evidence gaps to inform future autism transition services research. We used scoping review methods to assess 31 ATRP-funded published scientific studies. We charted study characteristics, topical domains, socio-ecological levels of variables, focus on equity, and inclusion of autistic participants. We evaluated how these topics were addressed across studies to identify continued gaps in the evidence base. Compared to prior published reviews and research agendas, we found improvements in characterization of study participants, broader examination of socio-ecological correlates, and examination of multiple outcome domains. However, we also identified continued deficits in inclusion of autistic study participants, use of multisectoral data, and research with a strong focus on equity. Our recommended priorities for autism transition services research to facilitate healthy life outcomes and wellbeing included: continued analysis of population-level data and improved data infrastructure; development of service delivery methods and interventions that target marginalized groups; expanded research to inform improvements in the performance and coordination of complex service ecosystems that interface with autistic youth; and bolstering the roles of autistic research participants.
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Details
- Title
- Evidence from the Autism Transitions Research Project (2017–2022): Capstone review and services research recommendations
- Creators
- Anne M Roux - Drexel UniversityLindsay L Shea - Drexel University, A.J. Drexel Autism InstituteHillary Steinberg - Drexel University, A.J. Drexel Autism InstituteJessica E Rast - Drexel UniversityKristy A Anderson - Florida State UniversityEmily Hotez - University of California, Los AngelesKashia Rosenau - University of California, Los AngelesAlice Kuo - University of California, Los AngelesEvva Assing-Murray - Health Resources and Services AdministrationPaul T Shattuck - Mathematica Policy Research
- Publication Details
- Autism research, v 16(3), pp 480-496
- Publisher
- Wiley
- Number of pages
- 17
- Grant note
- HRSA HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute; Health Management and Policy
- Web of Science ID
- WOS:000909404200001
- Scopus ID
- 2-s2.0-85146132380
- Other Identifier
- 991019593865504721
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InCites Highlights
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- Collaboration types
- Industry collaboration
- Domestic collaboration
- Web of Science research areas
- Behavioral Sciences
- Psychology, Developmental