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Accepted (AM)Open Access (License Unspecified), Open
Journal article
Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care
Journal of applied gerontology, v 44(1), pp 62-69
01 Jan 2025
PMID: 39214070
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
As the number of persons living with dementia (PLWD) enrolling in hospice care rises, caregiver support becomes increasingly crucial. While social support can help buffer caregiver stress, many caregivers report feeling isolated and having unmet needs, highlighting the limited research on this population. This qualitative descriptive study aimed to better understand caregivers’ social support during the period when the PLWD is enrolled in hospice care. Analyzing qualitative data from 22 caregivers of PLWD using conventional content analysis, we identified the theme “Variations in Social Connections.” This theme encompasses two subthemes: “never completely alone,” indicating social support from family, friends, and neighbors, and “disappointed sometimes,” reflecting instances when some individuals in the caregivers’ lives couldn’t provide regular support. These findings underscore the need for individualized interventions, as each caregiver experiences social support uniquely. Future research should consider the variations in social support among caregivers of PLWD to inform caregiving practices effectively.
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Details
- Title
- Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care
- Creators
- Hannah Cho (Corresponding Author) - University of PennsylvaniaJustine Sefcik - Drexel University, Doctoral NursingKarla Washington - Washington University in St. LouisOliver ParkerGeorge Demiris - University of Pennsylvania
- Publication Details
- Journal of applied gerontology, v 44(1), pp 62-69
- Publisher
- Sage
- Number of pages
- 8
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing
- Web of Science ID
- WOS:001307512800001
- Scopus ID
- 2-s2.0-85202918365
- Other Identifier
- 991021902061104721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Gerontology