Journal article
Exploring community engaged research experiences and preferences: a multi-level qualitative investigation
Research involvement and engagement, v 7(1), pp 19-19
30 Mar 2021
PMID: 33785074
Abstract
Community engagement may make research more relevant, translatable, and sustainable, hence improving the possibility of reducing health disparities. The purpose of this study was to explore strategies for community engagement adopted by research teams and identify areas for enhancing engagement in future community engaged research.
The Community Engagement Program of the Johns Hopkins Institute for Clinical and Translational Research hosted a forum to engage researchers and community partners in group discussion to reflect on their diverse past and current experiences in planning, implementing, and evaluating community engagement in health research. A total of 50 researchers, research staff, and community partners participated in five concurrent semi-structured group interviews and a whole group wrap-up session. Group interviews were audiotaped, transcribed verbatim, and analyzed using content analysis.
Four themes with eight subthemes were identified. Main themes included: Community engagement is an ongoing and iterative process; Community partner roles must be well-defined and clearly communicated; Mutual trust and transparency are central to community engagement; and Measuring community outcomes is an evolving area. Relevant subthemes were: engaging community partners in various stages of research; mission-driven vs. "checking the box"; breadth and depth of engagement; roles of community partner; recruitment and selection of community partners; building trust; clear communication for transparency; and conflict in community engaged research.
The findings highlight the benefits and challenges of community engaged research. Enhanced capacity building for community engagement, including training and communication tools for both community and researcher partners, are needed.
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69 citations in Scopus
Details
- Title
- Exploring community engaged research experiences and preferences: a multi-level qualitative investigation
- Creators
- Hae-Ra Han - Johns Hopkins UniversityAshley Xu - Johns Hopkins MedicineKyra J W Mendez - Johns Hopkins MedicineSafiyyah Okoye - Johns Hopkins UniversityJoycelyn Cudjoe - United States Government Accountability OfficeMona Bahouth - Johns Hopkins MedicineMelanie Reese - Older Women Embracing Life, Baltimore, MD, USALee Bone - Johns Hopkins UniversityCheryl Dennison-Himmelfarb - The Johns Hopkins Institute for Clinical and Translational Research, Community Engagement Program, Baltimore, MD, USA
- Publication Details
- Research involvement and engagement, v 7(1), pp 19-19
- Publisher
- Springer BMC
- Grant note
- U54AI108332 / National Center for Advancing Translational Sciences (US) P30NR018093 / NINR NIH HHS R01 AG062649 / NIA NIH HHS P30 NR018093 / NINR NIH HHS R01AG062649 / NIA NIH HHS UL1TR003098 / National Center for Advancing Translational Sciences (US)
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing
- Scopus ID
- 2-s2.0-85103542054
- Other Identifier
- 991021867187104721