Life Sciences & Biomedicine Rehabilitation Science & Technology Sport Sciences
Objectives
This study used a spina bifida electronic medical record and the National Spina Bifida Patient Registry to explore the relationship between neurosurgical/orthopedic surgeries and other variables on ambulation and transfer ability over time in individuals with spina bifida.
Design
This study was an analysis of longitudinal data collected within the National Spina Bifida Patient Registry and spina bifida electronic medical record. Logistic regression models were used to determine which variables were associated with ambulation/transfer ability in the myelomeningocele (MMC) and non-MMC populations.
Results
Longitudinal data from 806 individuals were collected. In the MMC group, decreased ambulation ability was associated with higher motor levels, tethered cord releases, spine/scoliosis surgeries, hip orthopedic surgeries, and having supplemental insurance. Increased ambulatory ability was associated with lower motor levels, tibial torsion/related surgeries, ankle/foot surgeries, being female, and being non-Hispanic/Latinx. Decreased transfer ability was associated with being Hispanic/Latinx and having higher motor levels. Lower motor level and ankle/foot surgeries were associated with increased transfer ability. No significant associations were found in the non-MMC group.
Conclusions
Motor level is an important predictor of ambulation and transfer ability in MMC. Surgeries distal to the knee were associated with higher levels of function; surgeries proximal to the knee were associated with lower functional levels.
Factors Associated With Ambulation and Transfer Ability A Study From the National Spina Bifida Patient Registry
Creators
Nicholas L. Benjamin - Drexel University
Gina McKernan - University of Pittsburgh
Sara Izzo - University of Pittsburgh
Theresa M. Crytzer - University of Pittsburgh
Gerald H. Clayton - Children's Hospital Colorado
Pamela E. Wilson - Children's Hospital Colorado
Amy J. Houtrow - Univ Pittsburgh, Dept Phys Med & Rehabil, Sch Med, Pittsburgh, PA USA
Brad E. Dicianno - Univ Pittsburgh, Dept Phys Med & Rehabil, Sch Med, Pittsburgh, PA USA
Publication Details
American journal of physical medicine & rehabilitation, v 101(7), pp 652-658
Publisher
Lippincott Williams & Wilkins
Number of pages
7
Grant note
Rehabilitation Research Experience for Medical Students (RREMS) Program
DD000736; DD000738; DD000740; DD000743; DD000766; DD000774; DD001057; DD001062; DD001063; DD001065; DD001069; DD001071; DD001072; DD001073; DD001074; DD001078; DD001080; DD001082; DD001091; DD001093 / National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia; United States Department of Health & Human Services; Centers for Disease Control & Prevention - USA
Resource Type
Journal article
Language
English
Academic Unit
College of Medicine
Web of Science ID
WOS:000811372000013
Scopus ID
2-s2.0-85132454417
Other Identifier
991021861207204721
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Collaboration types
Domestic collaboration
Web of Science research areas
Rehabilitation
Sport Sciences
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