Journal article
Family Functioning, Medical Self-Management, and Health Outcomes Among School-Aged Children With Sickle Cell Disease: A Mediation Model
Journal of pediatric psychology, v 43(4), pp 423-433
01 May 2018
PMID: 29048590
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background Informed by the Pediatric Self-Management Model, the present study tested relationships between parent and family functioning, sickle cell disease (SCD) self-management, and health outcomes for children with SCD. Method 83 children with SCD and a parent completed baseline data as part of a larger investigation of a family-based, problem-solving intervention for children with SCD (M age =8.47). Youth and parents completed a measure of child health-related quality of life (HRQOL), and parents completed measures of family efficacy, parenting stress, and SCD self-management. SCD pain episodes and urgent health utilization information over the past year were obtained via medical chart review. Results SCD self-management mediated the relationship between parent-reported family efficacy and parent proxy HRQOL, as well as the relationship between parenting stress and child and parent proxy HRQOL. Mediation models were nonsignificant for outcomes beyond HRQOL, including SCD pain episodes and urgent health utilization. Conclusion Fostering family efficacy and reducing parenting stress may be meaningful intervention targets for improving SCD self-management and child HRQOL among school-aged children. Although findings were consistent with the Pediatric Self-Management Model in terms of HRQOL, the model was not supported for pain episodes or urgent health utilization, highlighting the need for multi-method, longitudinal research on the SCD self-management behaviors that are linked to preventable health outcomes.
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Details
- Title
- Family Functioning, Medical Self-Management, and Health Outcomes Among School-Aged Children With Sickle Cell Disease: A Mediation Model
- Creators
- Alexandra M. Psihogios - Children's Hospital of PhiladelphiaLauren C. Daniel - Children's Hospital of PhiladelphiaReem Tarazi - Drexel UniversityKim Smith-Whitley - Childrens Hosp Philadelphia, Philadelphia, PA 19104 USAChavis A. Patterson - Children's Hospital of PhiladelphiaLamia P. Barakat - Children's Hospital of Philadelphia
- Publication Details
- Journal of pediatric psychology, v 43(4), pp 423-433
- Publisher
- Oxford Univ Press
- Number of pages
- 11
- Grant note
- U54 HL070585 / National Heart, Lung, and Blood Institute; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Heart Lung & Blood Institute (NHLBI) PF-16-166-01-CPPB / American Cancer Society
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Psychiatry
- Web of Science ID
- WOS:000441241100008
- Scopus ID
- 2-s2.0-85061071674
- Other Identifier
- 991021897413304721
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InCites Highlights
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Psychology, Developmental