Journal article
Family Perceptions of Health Care Access for Autistic Young Adults Receiving Disability Services
PEDIATRICS, v 149, e2020049437S
Apr 2022
PMID: 35363289
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
BACKGROUND: Autistic young adults (YAs) often live with family and present with complex health needs. Adults with developmental disabilities (DDs) who live with family are the least likely to receive preventive health care compared with residents of other settings. No published studies have examined intersectionality between age, race or ethnicity, household income, and health needs in health care access for autistic YA. This study explored health care access among autistic YAs receiving state DD services compared with other age and disability groups. METHODS: We analyzed data from the National Core Indicator's Adult Family Survey of families of DD service users ages 18 and older who lived in the respondent's home. We used bivariate analyses and multivariable logistic regression to examine family-reported access to health care providers when needed, the role of sociodemographics, and the complexity of health care needs in predicting consistent care. RESULTS: Approximately 70% of autistic YAs had consistent access to health care when needed, similar to autistic adults but at lower rates than those with other disabilities. Odds of consistent health care access were higher among autistic YAs who were Black or lived in a rural area and lower among those with co-occurring health conditions or who needed extensive personal care support. CONCLUSIONS: Nearly one-third of autistic YAs who lived with family and receive state DD services had difficulty consistently accessing needed health care. Improved surveillance of health care services in this population is needed in addition to innovations in Medicaid waivers, which fund DD services, to address health needs and support families in accessing care.
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Details
- Title
- Family Perceptions of Health Care Access for Autistic Young Adults Receiving Disability Services
- Publication Details
- PEDIATRICS, v 149, e2020049437S
- Publisher
- AMER ACAD PEDIATRICS; ELK GROVE VILLAGE
- Grant note
- This project is supported by the Health Resources and Services Administration of the US Department of Health and Human Services under cooperative agreement UT2MC39440, Autism Intervention Research Network on Physical Health and UJ2MC31073, Maternal and Child Health-Autism Transitions Research Project. The information, content, and/or conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Health Resources and Services Administration, US Department of Health and Human Services, or the US Government.
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Drexel University
- Web of Science ID
- WOS:000917950200017
- Scopus ID
- 2-s2.0-85127407735
- Other Identifier
- 991021861308604721
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- Web of Science research areas
- Pediatrics