Journal article
Family Priorities for Activity and Participation of Children and Youth With Cerebral Palsy
Physical therapy, v 90(9), pp 1254-1264
01 Sep 2010
PMID: 20576716
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Background Understanding family priorities for children and youth with cerebral palsy is essential for family-centered service. Objective The purposes of this study were: (1) to identify family priorities for activity and participation in children and youth with cerebral palsy and (2) to determine differences based on age and Gross Motor Functional Classification System (GMFCS) level. Design Five hundred eighty-five children and youth with cerebral palsy and their caregivers participated at regional children's hospitals. The children and youth were 2 to 21 years of age; 56% were male, and 44% were female. Their caregivers, predominantly mothers (80%), had a mean age of 40.3 years (SD=9.3). The Canadian Occupational Performance Measure was administered to caregivers to identify their priorities for their children. The priorities were coded into 3 categories (daily activities, productivity, and leisure) and 13 subcategories. The GMFCS levels were determined by assessors who met the criterion for reliability. Friedman and Kruskal-Wallis one-way analyses of variance were used to examine differences in priorities. Results Parents of children in all age groups and GMFCS levels II to V identified more priorities for daily activities. Parents of school-aged children and youth had more priorities for productivity than parents of younger children. For parents of children in all age groups and motor function levels, self-care was the most frequent priority subcategory. Sixty-one percent of parents identified at least one priority related to mobility. Limitations The study did not include qualitative analysis of priorities of parents. Conclusions Parents' priorities for their children and youth with cerebral palsy differed depending on age and gross motor function level; however, the most frequent priority for all age groups was daily activities. Interviews with families are recommended for identifying outcomes for activity and participation and developing an intervention plan.
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Details
- Title
- Family Priorities for Activity and Participation of Children and Youth With Cerebral Palsy
- Creators
- Lisa A Chiarello - L.A. Chiarello, PT, PhD, PCS, is Associate Professor, Department of Physical Therapy and Rehabilitation Sciences, Drexel University, 245 N 15th St, Mail Stop 502, Philadelphia, PA 19102-1192 (USA), and a member of the scientific staff of Shriners Hospitals for Children, Philadelphia, PennsylvaniaRobert J Palisano - R.J. Palisano, PT, ScD, is Professor, Department of Physical Therapy and Rehabilitation Sciences, Drexel University, and a member of the scientific staff of Shriners Hospitals for Children, PhiladelphiaJill M Maggs - J.M. Maggs, DocEd, MCSP, is Adjunct Faculty, Department of Physical Therapy and Rehabilitation Sciences, Drexel UniversityMargo N Orlin - M.N. Orlin, PT, PhD, is Associate Professor, Department of Physical Therapy and Rehabilitation Sciences, Drexel University, and a member of the scientific staff of Shriners Hospitals for Children, PhiladelphiaNihad Almasri - N. Almasri, PT, PhD, was a doctoral candidate in the Department of Physical Therapy and Rehabilitation Sciences, Drexel University, at the time the study was completedLin-Ju Kang - L.-J. Kang, PT, PhD, was a doctoral candidate in the Department of Physical Therapy and Rehabilitation Sciences, Drexel University, at the time the study was completedHui-Ju Chang - H.-J. Chang, PT, MS, is a doctoral candidate in the Department of Physical Therapy and Rehabilitation Sciences, Drexel University
- Publication Details
- Physical therapy, v 90(9), pp 1254-1264
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- [Retired Faculty]; Physical Therapy (and Rehabilitation Sciences)
- Web of Science ID
- WOS:000281784100006
- Scopus ID
- 2-s2.0-77956942927
- Other Identifier
- 991014878147504721
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InCites Highlights
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- Web of Science research areas
- Orthopedics
- Rehabilitation