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Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders
Journal article   Open access   Peer reviewed

Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders

Benjamin Zablotsky, Jessica Rast, Matthew D Bramlett and Paul T Shattuck
Maternal and child health journal, v 24(6), pp 796-804
Jun 2020
DOI: https://doi.org/10.1007/s10995-019-02858-6
PMID: 31897930
Featured in Collection :   UN Sustainable Development Goals @ Drexel
url
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7202980View
Accepted (AM)Open Access (License Unspecified),  Open

Abstract

Adolescent Autism Spectrum Disorder - psychology Autism Spectrum Disorder - therapy Child Child Behavior Disorders - psychology Child Behavior Disorders - therapy Child Health Developmental Disabilities - psychology Developmental Disabilities - therapy Female Humans Male Physician-Patient Relations Surveys and Questionnaires Transition to Adult Care - statistics & numerical data United States
To estimate the prevalence of health care transition components among youth with autism spectrum disorder (ASD) aged 12-17 using the 2016 National Survey of Children's Health (NSCH), compared to youth with other mental, behavioral, or developmental disorders (MBDDs) or youth without MBDDs. The 2016 NSCH is a nationally and state representative survey that explores issues of health and well-being among children ages 0-17. Within the NSCH, parents of a subset of youth, ages 12-17, are asked a series of questions about their youth's eventual transition into the adult health care system. The current study explores components of this transition, comparing youth diagnosed with ASD, youth with other mental, behavioral, or developmental disorders (MBDDs), and youth without MBDDs. Approximately 1-in-4 youth with ASD had actively worked with their doctor to understand future changes to their health care, significantly less than youth with other MBDDs and youth without MBDDs. Fewer than 2-in-5 youth with ASD had met with their doctor privately or had a parent who knew how their youth would be insured when they reached adulthood. The current analysis of a nationally representative sample of youth reveals discrepancies in the proportion of youth with ASD receiving appropriate health care transition planning compared to youth with other MBDDs and youth without MBDDs. These findings suggest the potential for barriers among youth with ASD to effectively transitioning into the adult health care system.

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27 citations in Web of Science
28 citations in Scopus

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UN Sustainable Development Goals (SDGs)

This publication has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

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Collaboration types
Domestic collaboration
Web of Science research areas
Public, Environmental & Occupational Health
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