Journal article
Health information use by patients with systemic lupus erythematosus (SLE) pre and during the COVID-19 pandemic
Lupus science & medicine, v 9(1), 000755
25 Oct 2022
PMID: 36283746
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
ObjectiveWe conducted an international survey of patients with SLE to assess their access, preference and trust in various health information sources pre-COVID-19 and during the COVID-19 pandemic.MethodsPatients with SLE were recruited from 18 observational cohorts, and patients self-reporting SLE were recruited through five advocacy organisations. Respondents completed an online survey from June 2020 to December 2021 regarding the sources of health information they accessed in the 12 months preceding (pre-11 March 2020) and during (post-11 March 2020) the pandemic. Multivariable logistic regressions assessed factors associated with accessing news and social media post-11 March 2020, and self-reporting negative impacts from health information accessed through these sources.ResultsSurveys were completed by 2111 respondents; 92.8% were female, 76.6% had postsecondary education, mean (SD) age was 48.8 (14.0) years. Lupus specialists and family physicians were the most preferred sources pre-11 March 2020 and post-11 March 2020, yet were accessed less frequently (specialists: 78.5% pre vs 70.2% post, difference −8.3%, 95% CI −10.2% to −6.5%; family physicians: 57.1% pre vs 50.0% post, difference −7.1%, 95% CI −9.2% to −5.0%), while news (53.2% pre vs 62.1% post, difference 8.9%, 95% CI 6.7% to 11.0%) and social media (38.2% pre vs 40.6% post, difference 2.4%, 95% CI 0.7% to 4.2%) were accessed more frequently post-11 March 2020 vs pre-11 March 2020. 17.2% of respondents reported negative impacts from information accessed through news/social media. Those outside Canada, older respondents or with postsecondary education were more likely to access news media. Those in Asia, Latin America or younger respondents were more likely to access social media. Those in Asia, older respondents, males or with postsecondary education in Canada, Asia or the USA were less likely to be negatively impacted.ConclusionsPhysicians, the most preferred and trusted sources, were accessed less frequently, while news and social media, less trusted sources, were accessed more frequently post-11 March 2020 vs pre-11 March 2020. Increasing accessibility to physicians, in person and virtually, may help reduce the consequences of accessing misinformation/disinformation.
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Details
- Title
- Health information use by patients with systemic lupus erythematosus (SLE) pre and during the COVID-19 pandemic
- Creators
- Francesca S Cardwell - University of WaterlooSusan J Elliott - University of WaterlooRicky Chin - University of CalgaryYvan St Pierre - McGill University Health CentreMay Y Choi - University of CalgaryMurray B Urowitz - University of TorontoGuillermo Ruiz-Irastorza - BioCruces Health research InstituteSasha Bernatsky - McGill UniversityDaniel J Wallace - Cedars-Sinai Medical CenterMichelle A Petri - Johns Hopkins MedicineSusan Manzi - Allegheny Health NetworkSang-Cheol Bae - Hanyang University Seoul HospitalJung-Min Shin - Hanyang UniversityAnselm Mak - National University of SingaporeJiacai Cho - National University of SingaporeChristine A Peschken - University of ManitobaRosalind Ramsey-Goldman - Northwestern UniversityPaul R Fortin - Centre hospitalier de l'Université LavalJohn G Hanly - Queen Elizabeth II Health Sciences CentreBernardo A Pons-Estel - Hospital Provincial de RosarioRomina Nieto - Hospital Provincial de RosarioAnca D Askanase - Columbia University Irving Medical CenterJuanita Romero-Diaz - Instituto Nacional de Ciencias Médicas y Nutrición Salvador ZubiránMarta Mosca - University of PisaIan N Bruce - Versus ArthritisLeigha Rowbottom - University of CalgaryLeanne Mielczarek - Systems, Applications & Products in Data ProcessingKarin Tse - Lupus Foundation of AmericaAshley Marion - Lupus Foundation of AmericaJuan Carlos Cáhiz-González - Federación Española de Enfermedades RarasTeresa G Cattoni - Asociación Lupus Argentina, Buenos Aires, ArgentinaAlain Cornet - Lupus Europe, Brussels, BelgiumAnn Elaine Clarke - University of Calgary
- Publication Details
- Lupus science & medicine, v 9(1), 000755
- Publisher
- Lupus Foundation of America
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- General Internal Medicine
- Web of Science ID
- WOS:000876071100001
- Scopus ID
- 2-s2.0-85142099246
- Other Identifier
- 991021933900904721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Rheumatology