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Investigation of ethnic differences in willingness to enroll in a rehabilitation research registry: a study of the Northeast Cognitive Rehabilitation Research Network
Journal article   Peer reviewed

Investigation of ethnic differences in willingness to enroll in a rehabilitation research registry: a study of the Northeast Cognitive Rehabilitation Research Network

Etienne Phipps, Diana Harris, Natalie Brown, Tina Harralson, Adelyn Brecher, Marcia Polansky and John Whyte
American journal of physical medicine & rehabilitation, v 83(12), pp 875-883
01 Dec 2004
DOI: https://doi.org/10.1097/01.PHM.0000143436.57173.E1
PMID: 15624565
Featured in Collection :   UN Sustainable Development Goals @ Drexel

Abstract

Abridged Index Medicus
OBJECTIVETo investigate differences between African American and white respondents in willingness to enroll in a rehabilitation research registry for future research and to determine if reasons for consenting and refusing to enroll differ by ethnicity.DESIGNInpatient recruitment results from 739 African American and white respondents in which patients were admitted to a rehabilitation hospital with a diagnosis of stroke or traumatic brain injury.RESULTSA similar proportion of African American and white respondents (both patients and surrogates) consented to enroll in the registry (72% of all African American respondents vs. 68% of all white respondents). African Americans and whites provided similar reasons for consenting and refusing to enroll. Demographic variables associated with consent were: higher education, younger age, and facility. The odds of consenting to enroll in the registry were 5 times as high for those who thought they had a great deal to gain from enrollment compared with those who thought they had less to gain and were nearly 2 times as high for those who reported little concern about privacy compared with those who were more concerned about privacy.CONCLUSIONSEthnicity was not found to be a predictor of willingness to enroll in a study registry. A greater belief of gain and less concern over privacy were associated with willingness to enroll, even after controlling for age, education, facility, and ethnic group.

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16 citations in Web of Science
16 citations in Scopus

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Collaboration types
Domestic collaboration
Web of Science research areas
Rehabilitation
Sport Sciences
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