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Invisible Loss: A Delphi Approach to Develop A Term for Individuals Who Experienced Perinatal Loss
Journal article   Peer reviewed

Invisible Loss: A Delphi Approach to Develop A Term for Individuals Who Experienced Perinatal Loss

Rachel Diamond, Jessica L. Chou and Susan Bonis
Journal of feminist family therapy, v 33(1)
02 Jan 2021

Abstract

Bereaved parent Delphi methodology disenfranchised grief perinatal loss pregnancy loss
The purpose of this Delphi pilot study was to 1) identify potential benefits to people who experienced perinatal loss if a term were established; 2) develop a term for people who experienced a perinatal loss because, at present, no term exists; and, 3) identify areas of consensus and contention between perinatal loss professionals and parents when considering terminology. Fifty-five participants (perinatal loss professionals, n = 33; perinatally bereaved parents, n = 22) proposed, reviewed, and rated terms through three rounds of surveys until bereaved parent was selected. Top terms were equally preferred between parents and professionals and, in general, participants described benefits to term development. Findings provide the perinatal loss community a first step in considering terminology.

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4 citations in Scopus

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This publication has contributed to the advancement of the following goals:

#5 Gender Equality
#3 Good Health and Well-Being

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Web of Science research areas
Family Studies
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