Journal article
Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease
Journal of pediatric psychology, v 40(10), pp 1085-1094
Nov 2015
PMID: 26136404
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Tested a family-based group problem-solving intervention, "Families Taking Control," (FTC) to improve school functioning and health-related quality of life (HRQL) for children with sickle cell disease.
Children and caregivers completed questionnaires assessing HRQL and school functioning and children completed performance-based measures of IQ and achievement at baseline and 6 months later. Families were randomized to the intervention (FTC, n = 42) or delayed intervention control (DIC, n = 41) group. FTC involved a full-day workshop followed by 3 booster calls.
There were no differences between FTC completers (n = 24) and noncompleters (n = 18). FTC group (n = 24) and DIC group (n = 38) did not differ significantly on primary outcomes at follow-up: number of formal academic and disease-related accommodations, individualized education plan/504 service plan, school absences, school HRQL, or academic skills.
Although families found FTC to be acceptable, there were no intervention effects. Challenges of the trial and implications for future research are discussed.
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Details
- Title
- Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease
- Creators
- Lauren C Daniel - Children's Hospital of PhiladelphiaYimei Li - Children's Hospital of PhiladelphiaKelsey Smith - University of South CarolinaReem Tarazi - Department of Psychiatry, Drexel University College of Medicine Division of Hematology, St. Christopher's Hospital for Children.M Renee Robinson - Department of Psychiatry, Drexel University College of Medicine Division of Hematology, St. Christopher's Hospital for Children.Chavis A Patterson - Division of Neonatology, The Children's Hospital of Philadelphia Department of Psychiatry, Perelman School of Medicine of the University of Pennsylvania.Kim Smith-Whitley - Children's Hospital of PhiladelphiaMarie Stuart - Thomas Jefferson UniversityLamia P Barakat - Children's Hospital of PhiladelphiaKeisha A Smith - School of Education (1997-)
- Publication Details
- Journal of pediatric psychology, v 40(10), pp 1085-1094
- Publisher
- Oxford University Press
- Grant note
- U54 HL070585 / NHLBI NIH HHS L40 HL115784 / NHLBI NIH HHS T32 GM081740 / NIGMS NIH HHS 1RC1MD004418 / NIMHD NIH HHS
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Psychiatry; School of Education
- Web of Science ID
- WOS:000364771600011
- Scopus ID
- 2-s2.0-84946845086
- Other Identifier
- 991019174396604721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Psychology, Developmental