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Accepted (AM)Open Access (License Unspecified), Open
Journal article
Lessons Learned in Developing a Culturally Adapted Intervention for African-American Families Coping with Parental Cancer
Journal of cancer education, v 27(4), pp 744-751
01 Sep 2012
PMID: 22791545
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Prior clinical research supports the effectiveness of cancer support groups for cancer patients and their families, yet African-American families continue to be underrepresented in cancer support groups and in cancer clinical research studies. In order to fill this gap, we developed and evaluated a culturally adapted family support group for African-American families coping with parental cancer. We encountered unexpected challenges in overcoming barriers to recruitment, partnering with oncology providers, and building trust with the African-American community and African-American families coping with parental cancer. We describe actions taken during the two phases of this study and lessons learned along the way about recruiting and engaging African-American families in cancer support group studies, partnering with oncology providers, networking with the African-American community, and the importance of demonstrating cultural sensitivity to overcome the understandable historical legacy of mistrust.
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Details
- Title
- Lessons Learned in Developing a Culturally Adapted Intervention for African-American Families Coping with Parental Cancer
- Creators
- Maureen P. Davey - Drexel UniversityKarni Kissil - Drexel UniversityLaura Lynch - Drexel UniversityLa-Rhonda Harmon - Multisystemic Therapy ServicesNancy Hodgson - Johns Hopkins University
- Publication Details
- Journal of cancer education, v 27(4), pp 744-751
- Publisher
- Springer Nature
- Number of pages
- 8
- Grant note
- BARRA Foundation, Philadelphia, Pennsylvania
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Counseling and Family Therapy
- Web of Science ID
- WOS:000312328000023
- Scopus ID
- 2-s2.0-84876287717
- Other Identifier
- 991019168953004721
UN Sustainable Development Goals (SDGs)
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Education, Scientific Disciplines
- Oncology
- Public, Environmental & Occupational Health