Journal article
Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project
Autism : the international journal of research and practice, v 24(4), pp 822-833
01 May 2020
PMID: 32429818
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Autistic adults are significantly more likely to experience co-occurring mental
health conditions such as depression and anxiety. Although intervention studies
are beginning to be implemented with autistic adults to address mental health
outcomes, little is known about what research autistic adults feel is needed, or
what mental health outcomes are of value to them. The purpose of this article is
to describe a project that involved more than 350 autistic adults and other
stakeholders as coproducers of research priorities on mental health. Through a
variety of methods including a large online survey, two large stakeholder
meetings, and three face-to-face focus groups, the project team identified five
top priorities for mental health research which should be incorporated by
researchers and practitioners in their work with autistic adults. These included
research to inform trauma-informed care approaches; societal approaches for
inclusion and acceptance of autistic individuals; community-available approaches
for self-management of mental health; evaluation of adverse mental health
outcomes of existing interventions; and improvements in measurement of quality
of life, social well-being, and other preferred outcomes in autistic adults.
Metrics
Details
- Title
- Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project
- Creators
- Teal W Benevides - Augusta UniversityStephen M Shore - Adelphi UniversityKate Palmer - University of WollongongPatricia Duncan - University of WollongongAlex Plank - University of WollongongMay-Lynn Andresen - University of WollongongReid Caplan - University of WollongongBarb Cook - University of WollongongDena Gassner - Adelphi UniversityBecca Lory Hector - University of WollongongLisa Morgan - University of WollongongLindsey Nebeker - University of WollongongYenn Purkis - University of WollongongBrigid Rankowski - University of WollongongKarl Wittig - University of WollongongSteven S Coughlin - Augusta University
- Publication Details
- Autism : the international journal of research and practice, v 24(4), pp 822-833
- Publisher
- SAGE Publications
- Number of pages
- 12
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- A.J. Drexel Autism Institute
- Web of Science ID
- WOS:000535207500003
- Scopus ID
- 2-s2.0-85084597305
- Other Identifier
- 991022008193804721
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InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Psychology, Developmental