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Accepted (AM)Open Access (License Unspecified), Open
Journal article
Mapping the Landscape of Those Left Behind When a Person With Dementia Dies: Roles of Race and Ethnicity
Alzheimer disease and associated disorders, v 38(4)
23 Sep 2024
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Introduction: People with dementia can have many family and friends who might be affected by their deaths. Pursuing the long-term aim of understanding how dementia deaths affect close family and friends, this project lays groundwork through estimates of who those close family and friends are, with special attention to race and ethnicity. Method: Regression models estimated associations between dementia, race/ethnicity, and close family and friend network size, controlling for age, sex, education, marital status, and household wealth for 1386 deceased people with dementia from the Health and Retirement Study (2004 to 2018). Results: Persons with dementia had an average of 9.4 close family and friends at death. But patterns of close family and friends were different among non-Latino Black (10.8), Latino (9.9), and non-Latino White (9.2) people with dementia at death. Notably, non-Latino White persons with dementia had the fewest close family (3.7), followed by non-Latino Black (5.1), and Latino (7.7) persons with dementia. Discussion: Knowing who might be affected by dementia deaths is the first step to explore how dementia-related deaths impact close family and friends. Future work can now sample bereaved family and friends of people with dementia to explore their experiences and develop culturally appropriate supports.
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Details
- Title
- Mapping the Landscape of Those Left Behind When a Person With Dementia Dies
- Creators
- Zachary G. Baker - Arizona State UniversitySeungYong Han - Kaiser PermanenteJustine S. Sefcik - Drexel UniversityDarina V. Petrovsky - Duke UniversityKris Pui Kwan Ma - University of WashingtonMatthew Lee Smith - School of Public Health, Texas A&M University, College Station, TXJuanita-Dawne R. Bacsu - Thompson Rivers UniversityZahra Rahemi - Clemson UniversityJoseph Saenz - Arizona State University
- Publication Details
- Alzheimer disease and associated disorders, v 38(4)
- Publisher
- LIPPINCOTT WILLIAMS & WILKINS
- Number of pages
- 6
- Grant note
- National Institute on Aging of the National Institutes of Health: R00AG073463, K23AG073618 National Institute of Nursing Research of the National Institutes of Health: K23NR018673
Research reported in this publication was supported by the National Institute on Aging of the National Institutes of Health [R00AG073463 to Z.G.B., K23AG073618 to D.V.P.], and the National Institute of Nursing Research of the National Institutes of Health [K23NR018673 to J.S.S.]. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Doctoral Nursing
- Web of Science ID
- WOS:001363727800006
- Scopus ID
- 2-s2.0-85205148397
- Other Identifier
- 991021904629004721
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- Collaboration types
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Clinical Neurology
- Pathology