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Nonpharmacologic Interventions for Family Caregivers of People Living With Dementia in Latin-America: A Scoping Review
Journal article   Open access   Peer reviewed

Nonpharmacologic Interventions for Family Caregivers of People Living With Dementia in Latin-America: A Scoping Review

José M. Aravena, Jean Gajardo, Rodrigo Saguez, Ladson Hinton and Laura N. Gitlin
The American journal of geriatric psychiatry, v 30(8), pp 859-877
2021
DOI: https://doi.org/10.1016/j.jagp.2021.10.013
Featured in Collection :   UN Sustainable Development Goals @ Drexel
url
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11731639View
Accepted (AM)Open Access (License Unspecified),  Open

Abstract

Alzheimer Disease evidence-based practice Global Health Psychotherapy Rehabilitation research Social determinants of health
•What are the characteristics and research gaps of dementia family caregiver nonpharmacological intervention studies conducted in Latin America (LATAM), including methodologies, participants, interventions, and outcomes?•Forty-five studies of single case to randomized trials conducted in 8 of the 31 countries in this region. Most studies enrolled female (daughters) caregivers with low formal education, tested disease education and cognitive/behavioral approaches, and reported improvements in caregiver depression, quality of life, and burden.•Considering LATAM is one of the regions with the highest dementia burden, there is an urgent need to develop and test culturally relevant interventions that address unmet needs applying rigorous methodologies, and with high scalability to be implemented in current national plans for dementia care. Dementia prevalence in Latin America (LATAM) is rapidly increasing, contributing to significant family burden. As families are responsible for care, supportive interventions are critical. To understand the state-of-the-science, a scoping review was conducted of non-pharmacologic interventions for caregivers of people living with dementia (PLWD) in LATAM. Eight databases were searched (PubMed, Embase, PsycINFO, Scopus, Scielo, Lilacs, Redalyc, Google Scholar) for nonpharmacological intervention studies published up to July, 2021 in LATAM reporting at least 1 caregiver outcome. A qualitative synthesis examined study designs, participants, and outcomes characteristics. Forty-five studies were identified from 25.8% (n = 8/31) of LATAM countries (28 = Brazil, 4 = Chile, 4 = Cuba, 4 = México, 2 = Colombia, 1 = Perú, 1 = Ecuador, 1 = Argentina): 29% (n = 17) were randomized clinical trials (RCT), 7% (n = 3) nonrandomized comparison trials, 42% (n = 19) pre-post trials, 9% (n = 4) postintervention analyses, and 4% (n = 2) single case studies, comprising a total of 1,171 caregivers and 817 PLWD. For 20 RCT and nonrandomized comparison trials, 31 interventions were tested of which 48.4% (n = 15) targeted caregivers and 32.3% (n = 10) dyads. Most studies involved daughters with less than 12 years of education and tested multicomponent interventions involving disease education (90%), and cognitive behavioral coping (45%). Half of interventions (51.6%; n = 16/31) tested were adapted from other countries, and reported benefits for caregiver depression, quality of life, and burden. Studies were conducted in a limited number of LATAM countries and few were RCTs. Results of RCTs showed benefits for socially vulnerable caregivers on psychosocial outcomes. There is an urgent need to rigorously evaluate more country/culturally specific interventions addressing unmet familial needs beyond psychosocial support.

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7 citations in Web of Science
7 citations in Scopus

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Collaboration types
Domestic collaboration
International collaboration
Web of Science research areas
Geriatrics & Gerontology
Gerontology
Psychiatry
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