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Parents' and young adults' perspectives on transition outcomes for young adults with autism
Journal article   Open access   Peer reviewed

Parents' and young adults' perspectives on transition outcomes for young adults with autism

Collette Sosnowy, Chloe Silverman and Paul Shattuck
Autism : the international journal of research and practice, v 22(1), pp 29-39
01 Jan 2018
PMID: 29020791
url
https://doi.org/10.1177/1362361317699585View
Published, Version of Record (VoR)Maybe Open Access (Publisher Bronze) Open

Abstract

Psychology Psychology, Developmental Social Sciences
Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n=21) and young adults with autism spectrum disorder (n=20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them. Understanding these perspectives will help identify areas of need as well as disconnections between service objectives and the goals of young adults and their families. Participants described outcomes as more complex and nuanced than current conceptions and measures account for. They defined and evaluated outcomes in relation to their or their child's individual abilities, needs, and desires. These findings provide important insight into challenges to and facilitators of desired outcomes, which has implications for programming, service delivery, and policy.

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102 citations in Scopus

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Web of Science research areas
Psychology, Developmental
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