Journal article
Patient Expectations and Perceptions of Goal-setting Strategies for Disease Management in Rheumatoid Arthritis
Journal of rheumatology, v 42(11), pp 2046-2054
01 Nov 2015
PMID: 26233504
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Objective. To identify how patients perceive the broad effect of active rheumatoid arthritis (RA) on their daily lives and indicate how RA disease management could benefit from the inclusion of individual goal-setting strategies.
Methods. Two multinational surveys were completed by patients with RA. The "Good Days Fast" survey was conducted to explore the effect of disease on the daily lives and relationships of women with RA. The "Getting to Your Destination Faster" survey examined RA patients' treatment expectations and goal-setting practices.
Results. Respondents from all countries agreed that RA had a substantial negative effect on many aspects of their lives (work productivity, daily routines, participation in social and leisure activities) and emotional well-being (loss of self-confidence, feelings of detachment, isolation). Daily pain was a paramount issue, and being pain-and fatigue-free was considered the main indicator of a "good day." Setting personal, social, and treatment goals, as well as monitoring disease progress to achieve these, was considered very beneficial by patients with RA, but discussion of treatment goals seldom appeared to be a part of medical appointments.
Conclusion. Many patients with RA feel unable to communicate their disease burden and treatment goals, which are critically important to them, to their healthcare provider (HCP). Insights gained from these 2 surveys should help to guide patients and HCP to better focus upon mutually defined goals for continued improvement of management and achievement of optimal care in RA.
Metrics
Details
- Title
- Patient Expectations and Perceptions of Goal-setting Strategies for Disease Management in Rheumatoid Arthritis
- Creators
- Vibeke Strand - Stanford UniversityGrace C. Wright - New York University Langone Medical CenterMartin J. Bergman - Drexel UniversityJeyanesh Tambiah - UCB Pharma, Smyrna, GA, #N#USAPeter C. Taylor - Kennedy Institute of Rheumatology, Oxford, #N#UK.
- Publication Details
- Journal of rheumatology, v 42(11), pp 2046-2054
- Publisher
- J Rheumatol Publ Co
- Number of pages
- 9
- Grant note
- UCB Pharma; UCB Pharma SA
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Medicine (Graduate)
- Web of Science ID
- WOS:000365221400008
- Scopus ID
- 2-s2.0-84946593686
- Other Identifier
- 991019168892404721
UN Sustainable Development Goals (SDGs)
This publication has contributed to the advancement of the following goals:
InCites Highlights
Data related to this publication, from InCites Benchmarking & Analytics tool:
- Collaboration types
- Industry collaboration
- Domestic collaboration
- International collaboration
- Web of Science research areas
- Rheumatology