Journal article
Perceptions and Attitudes Toward Genetic Counselors and Genetic Testing Among Certified Professional Midwives in Vermont: A Modified Grounded Theory Study
QUALITATIVE HEALTH RESEARCH
27 Dec 2023
PMID: 38150356
Featured in Collection : UN Sustainable Development Goals @ Drexel
Abstract
Increasingly, pregnant people in the United States are choosing to give at birth at home, and certified professional midwives (CPMs) often attend these births. Care by midwives, including home birth midwives, has the potential to decrease unnecessary medical interventions and their associated health care costs, as well as to improve maternal satisfaction with care. However, lack of integration into the health care system affects the ability of CPMs to access standard medications and testing for their clients, including prenatal screening. Genetics and genomics are now a routine part of prenatal screening, and genetic testing can contribute to identifying candidates for planned home birth. However, research on genetics and midwifery care has not, to date, included the subset of midwives who attend the majority of planned home births, CPMs. The purpose of this study was to examine CPMs' access to, and perspectives on, one aspect of prenatal testing, genetic counselors, and genetic counseling services. Using semi-structured interviews and a modified grounded theory approach to narrative analysis, we identified three key themes: (1) systems-level issues with accessing information about genetic counseling and genetic testing; (2) practice-level patterns in information delivery and self-awareness about knowledge limitations; and (3) client-level concerns about the value of genetic testing relative to difficulties with access and stress caused by the information. The results of this study can be used to develop decision aids that include information about genetic testing and genetic counseling access for pregnant people intending home births in the United States.
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Details
- Title
- Perceptions and Attitudes Toward Genetic Counselors and Genetic Testing Among Certified Professional Midwives in Vermont: A Modified Grounded Theory Study
- Publication Details
- QUALITATIVE HEALTH RESEARCH
- Publisher
- SAGE PUBLICATIONS INC; THOUSAND OAKS
- Grant note
- The authors would like to acknowledge Kathleen Berentsen Swenson, MS, MPH, and Boston University's Genetic Counseling Program for supporting this project.
- Resource Type
- Journal article
- Language
- English
- Academic Unit
- Drexel University
- Web of Science ID
- WOS:001132726700001
- Scopus ID
- 2-s2.0-85181198461
- Other Identifier
- 991021860716604721
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- Collaboration types
- Domestic collaboration
- Web of Science research areas
- Information Science & Library Science
- Public, Environmental & Occupational Health
- Social Sciences, Biomedical
- Social Sciences, Interdisciplinary